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Author Christie Cox about her new EDS book ‘Holding It All Together When You’re Hypermobile’
For our Chronic Pain Partners newsletter, journalist Karina Sturm spoke with Christie Cox, fellow zebra and author of the new EDS book “Holding It All Together When You’re Hypermobile.” Cox shares her journey to getting diagnosed with EDS, what motivated her to write this book, and what the book is all about. [We will review […]
Where physical therapy ends and magic begins: Healy Physical Therapy and Sports Medicine
“He helped my daughter get from being bedridden to going back to college,” says Michele Pestana when I meet her at Healy Physical Therapy and Sports Medicine in Providence, Rhode Island, on a hot summer day in July 2022. Pestana is 47 years old and has EDS, like most of Dr. Michael (Mike) Healy‘s patients. […]
The Sextacular EDS Zebra Group: An interview with admin Mary Cordaro
[CW: The following article is for an adult audience due to its content and language. We are sharing challenges related to having sex and ways of overcoming those.] For our October newsletter, journalist Jackie Saa spoke with Mary Cordaro, admin of the “Sex-tacular EDS Zebras” group on Facebook. The idea behind the group was that […]
EDS is not all in the head!
In my decades of working with people with EDS, the number one comment I get is, “my doctor will not treat me and says it is all in my head.”And lately, some physicians and psychiatrists suggest that people with EDS have lots of mental health conditions, which is harmful to the community. In the following […]
Interview with Dr. Pradeep Chopra regarding the psychological and psychiatric aspects of the Ehlers–Danlos syndromes and hypermobility spectrum disorder
Introduction EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic Pain Partners to speak about a recently published review on the psychological and psychiatric aspects of Ehlers-Danlos syndrome. Dr. Chopra has been treating complex pain patients with a focus on people with Ehlers-Danlos syndrome for decades and is a passionate advocate for EDSers across […]
Dr. Pradeep Chopra: response to the paper on psychological and psychiatric aspects of the Ehlers–Danlos syndromes
EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic Pain Partners to speak about a recently published review on the psychological and psychiatric aspects of the Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders. Dr. Chopra has been treating complex pain patients focusing on people with the Ehlers-Danlos syndromes for decades, and is a passionate advocate […]
Brianna Cardenas, PA-C, ATC, on challenges as a queer woman of color with EDS
CW: Discussion of suicidal thoughts and depression. [None of the information provided in this Q&A is to be taken as medical advice; please consult a doctor if you have questions about your medical condition.] For our June newsletter, the Chronic Pain Partners media team interviewed a diverse group of people […]
Adrienne Ferron on challenges as a woman of color with EDS
For our June newsletter, the Chronic Pain Partners media team interviewed a diverse group of people to highlight the diversity of our community and emphasize the challenges that arise when one belongs to more than one minority. In this interview, journalist Karina Sturm speaks with Adrienne Ferron, an EDS advocate, podcaster, and social media influencer […]
