jangroh
Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026)
April 3, 2026
On March 29, 2026, the Ehlers-Danlos Syndrome community lost one of our most beloved specialists and longtime champions of EDS, UK rheumatologist Dr. Rodney Grahame. He will be remembered as one of the earliest and most vocal advocates for Hypermobility Syndromes and EDS awareness. I was first tipped off to the world of hypermobility at […]
September is Pain Awareness Month
September 17, 2025
September is recognized internationally as Pain Awareness Month. (Look for hashtags #PainAwarenessMonth and #ThisIsPain on social media). Most types of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder unfortunately cause varying amounts of pain for most patients, so Chronic Pain Partners/EDS Awareness is joining the chorus to raise awareness. It’s in our name, after all!
