Author Archive

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Jeannie Di Bon’s Zebra Club

Posted on January 17, 2022

Program review by Karina Sturm “Wow,” was the first word that came to my mind when I started to exercise with Jeannie Di Bon’s new program: The Zebra Club. My feelings regarding Jeannie’s new app were very similar to when I read Diana Jovin’s book Disjointed, which I recently reviewed as well. However, I wouldn’t be much of […]

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October Ehlers-Danlos News & Updates

Posted on September 30, 2021

      The Funny Bone News   Because with EDS, every bone is a funny bone.    Stronger Together ‘Positive Vibes to Keep Us Alive’   Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too…  A typical story mine, wasn’t diagnosed ‘til twenty-five; […]

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EDS Awareness Shirts -– for Holiday Gifts – only $10 each!

Posted on November 12, 2020

Now available at www.bodysupportstore.com — Zebra Shirts for awareness are only $10 each! This is the perfect way to communicate our EDS Awareness message during our May EDS Awareness month activities or the EDS conference in September!

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New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ IS NOW ON LINE

Posted on August 24, 2020

  New Feature-Length Ehlers-Danlos Documentary   Fellow Zebras, medical professionals, and everyone living with an invisible condition,          We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome     Click here for the link to the […]

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Cincinnati Children’s Hospital Connective Tissue Disorder Clinic Video

Posted on July 28, 2020

Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.

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Hypermobility Happy Hour Podcast interview with John Ferman

Posted on August 17, 2019

John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. John discusses the many EDS educational events and programs that the EDS Awareness team has conducted since 2011 and future plans for EDS patient, Physician CME and Nursing CEU Educational programs. Click here for […]

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