Author Archive
Posted on January 17, 2022
Program review by Karina Sturm “Wow,” was the first word that came to my mind when I started to exercise with Jeannie Di Bon’s new program: The Zebra Club. My feelings regarding Jeannie’s new app were very similar to when I read Diana Jovin’s book Disjointed, which I recently reviewed as well. However, I wouldn’t be much of […]
Posted on December 2, 2021
December Ehlers-Danlos News
Posted on November 2, 2021
CLICK HERE to read
Posted on September 30, 2021
The Funny Bone News Because with EDS, every bone is a funny bone. Stronger Together ‘Positive Vibes to Keep Us Alive’ Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too… A typical story mine, wasn’t diagnosed ‘til twenty-five; […]
Posted on November 12, 2020
Now available at www.bodysupportstore.com — Zebra Shirts for awareness are only $10 each! This is the perfect way to communicate our EDS Awareness message during our May EDS Awareness month activities or the EDS conference in September!
Posted on August 24, 2020
New Feature-Length Ehlers-Danlos Documentary Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome Click here for the link to the […]
Posted on July 28, 2020
Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.
Posted on August 17, 2019
John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. John discusses the many EDS educational events and programs that the EDS Awareness team has conducted since 2011 and future plans for EDS patient, Physician CME and Nursing CEU Educational programs. Click here for […]