Posted on June 7, 2012
Viviana Garcia Metendez discusses how she is providing EDS Awareness through videos and blogs. Thanks, Viviana! We appreciate your dedication to helping others learn more about Ehlers-Danlos Syndrome. Click here for more about Viviana
Posted on June 5, 2012
Wrist instability is a very common problem for EDSers. I need support while I’m using my computer or driving long distances. Stabilizing my wrist can prevent dislocations from lifting or carrying items. Bracing reduces pressure on my wrist when I experience “torque” – a result of sideways or twisting movements. Keeping my wrist in a straight and still […]
Posted on June 1, 2012
An ordinary horizontal mouse requires your forearm to twist away from its natural position. This can create more problems for unstable joints like mine. EDSers do better with a grip that is the same as an ordinary mouse, just turned sideways into a handshake position. I got used to the Handshake Mouse very quickly. This Vertical Mouse […]
Posted on May 30, 2012
Paula has EDS and describes, in her own words, what it is like to deal with this disorder. She is a brave lady who keeps a positive attitude while managing Ehlers-Danlos Syndrome. Check out EDS – Every Day Syndrome – by Paula Dixon Click here to read more about Paula.
Posted on May 21, 2012
This International symposium will focus on current progress and controversies in diagnosis, treatment and pathogenesis of Ehlers-Danlos syndrome. Experts will present the latest developments in the field, both of the clinical and molecular level.
Posted on May 19, 2012
Many families are struggling with the pains of EDS. They are trying to educate themselves and their practitioners. They do not know where to find support. This is a story of a particular family dealing with this disability. “We moms of EDS kids have a difficult task and a huge responsibility when making these decisions – […]
Posted on May 18, 2012
EDS is a little know disability that affects more than 1 in 5000 individuals in the United States alone. Many doctors are not familiar with it. Most people who suffer from EDS are undiagnosed for years – or decades – before they find an answer. Can you relate to this picture? “Ehlers-Danlos syndrome (EDS) is a […]