Ehlers Danlos Syndrome Support Group of Asheville, NC

The Ehlers-Danlos Syndrome Support Group of Asheville (EDSSGA) was established in 2015 to help support patients, family members, caregivers and medical professionals in understanding, coping with, and treating Ehlers-Danlos Syndrome and its many comorbidities, such as Mast Cell Activation Disorder, Postural Orthostatic Tachycardia Syndrome, gastrointestinal issues and more. In addition to meeting in person monthly, we also provide a Facebook Group, a Facebook Page, and our website to help distribute information, provide support and a safe place for EDSers to connect and share. We also raise money to hold EDS Awareness events in the local area, and to attend symposiums and conferences in order to interact with, learn from, and educate physicians who treat EDS, so we can share our findings with the EDS community and help improve physician understanding of this complex illness. It is also our goal to pay to send two people to the Ehlers-Danlos National Foundation's Conference each year, one support group administrator and one member. We do not charge dues but we do fundraise. Please contact us to find out how you can help.

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