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How to Train a Service Dog

September 29, 2019 by Emma Lunsford Click here for full article, Images and videos Every dog-lover knows the internal struggle of seeing a service dog with a “DO NOT PET” vest on. As hard as it is, it’s super important to know that service dogs aren’t defined as pets, but as workers. And for some people, they’re absolutely […]

Roslyn’s Quest for a Service Dog to Assist with Ehlers-Danlos Syndrome

In response to one mother’s request for help, proposed legislation requiring insurance companies to provide coverage for the costs for service dogs will be considered by lawmakers in Hartford, CT.  Roslyn is navigating the process of obtaining a service dog for assistance with her EDS needs. The community is rallying behind her! By Kathleen Schassler, The […]

Ehlers-Danlos Service Dog is Nominated for Kennel Club Award

EDSer Shelley and her service dog, Kibble, have been nominated for the Kennel Club’s Eukanuba “Friends For Life” competition. He has helped her regain much independence! The dog is trained to assist Shelley in all aspects of her life, including retrieving items and pressing the alarm button on the phone if she has an emergency. A Dunstable dog lover and […]

The fully accessible guide to training an emotional support dog

Created by Lori Zaino This article was reprinted with permission from this author . The complete article is available at this link Covered in this guide The lowdown on emotional support dogs: what they are, how they differ from service dogs, who should get one, and how to certify them. Breeds/types of dogs that make […]

“Disjointed” is a new book for patients with hEDS/HSD and their physicians

Disjointed is now live on Amazon and shipping. Click here for a link to order online, Description:  Disjointed is for patients with hEDS/HSD and the physicians who treat them. hEDS/HSD is an underrecognized, complex, multisystemic disorder, with the silos of healthcare’s specialties often working against effective and efficient treatment. With 21 specialist & 6 resource chapters, […]

Living With EDS: Judgment from Others

“When you judge another, you do not define them, you define yourself” – Wayne Dyer Living with Ehlers Danlos Syndrome (EDS) is like being a doll that is stitched together but whose stitches are slowly coming apart at the seams.  You know it, you feel the pain but are powerless to stop it. You have […]

Diagnosing EDS

[This content is outdated. Our team is currently working on an update. Stay tuned and come back later.] Diagnostic criteria differs depending on which type of EDS is suspected.  Criteria for the 3 most common types of EDS are described below. Hypermobility Type: The Hypermobility Type is the most common form of Ehlers-Danlos Syndrome. It is characterized […]

Run like a Zebra For EDS Race

Chronic Pain Partners 501(c)(3) is a gold Sponsor for this Event.     Florence, WI | Saturday, May 21, 2022 at 9:00 AM CST   info@runlikeazebra.com | 715-301-0905 Race Information 1k & 5K Run, Walk or Roll Place Date and Time 749 Central Ave Florence, WI 54121 Saturday, May 21, 20229:00 am CST Details The […]

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Upcoming and Previous Webinar Speakers

  • webinar-image

    Ross A. Hauser, MD
    10 Low-cost ways to improve symptoms of peripheral joint and spinal instabilities from hEDS, including brain fatigue, pain, POTS, MCAS and more.

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  • webinar-image

    Bonnie Nasar RDN
    “How to Build an EDS Plate: Feel Better with Food”?

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  • webinar-image

    Presenter: Jeannie Di Bon   MA PMA-CPT
    Title: “A Pain in the Hypermobile Neck”

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  • webinar-image

    Presenter: Dr. Eli Penn
    Title: hEDS and the Gastrointestinal Tract

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  • webinar-image

    Pradeep Chopra, MD
    “Management of Long Covid with EDS”

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  • webinar-image

    Eloise Stager, LMT, CST-D
    “The Role of CranioSacral Therapy in
    Pain Management and ANS Regulation”

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  • webinar-image

    Anne Maitland, M.D., Ph.D
    “Beyond allergies- mast cell activation diseases!”

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  • webinar-image

    Clair Francomano MD
    “EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”

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  • webinar-image

    Sonny Mullen
    “A Guide to Medical Fundraising”

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  • webinar-image

    Karina Sturm
    New Feature-Length Ehlers-Danlos Documentary
    “We Are Visible”

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  • webinar-image

    Podcast Interview with Karina Strum
    ‘We are Visible’ Podcast Interview

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  • webinar-image

    Andrea Julian
    “Starting and Maintaining a Successful Support Group”

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  • webinar-image

    Maria Dastur, M.B.A.
    Organizing and Managing your Facebook and Social Media

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  • webinar-image

    Alan G. Pocinki M.D.
    Sleep Disorders in EDS

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  • webinar-image

    Ross A. Hauser, MD
    Consequences and Resolution of Joint Instabilities in H- EDS

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  • webinar-image

    Bonnie Nasar RDN
    “Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”

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  • webinar-image

    Jeannie Di Bon. MA, PMA-CPT
    “How can Pilates help with my EDS Symptoms”

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  • webinar-image

    Petra Klinge MD
    “Managing Life with Neurological Symptoms and EDS”

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  • webinar-image

    Cathy L. Pederson, Ph.D
    “Understanding the Relationship between Chronic Illness and Suicide”

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  • webinar-image

    Patrick Agnew DPM
    “Foot and Ankle Treatments for EDS”

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  • webinar-image

    Susan Tran, PhD
    “Partnering with Families to Improve Functioning in Youth with EDS”

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  • webinar-image

    Paolo A Bolognese, MD
    Chiari I Malformation, EDS, and Craniocervical Instability

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  • webinar-image

    Lauren Stiles, JD
    “Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”

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  • webinar-image

    Jordan Tishler, MD
    Medical Cannabis – Pain Relief for EDS

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  • webinar-image

    Jeannie Di Bon, MA, PMA-CPT
    “Strengthen and Control Your Hypermobile Core With Pilates”

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  • webinar-image

    John Ferman
    Online EDS Physician CME Education

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  • webinar-image

    Anne Maitland, MD, PhD
    “Mast Cell Activation Disorder”

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  • webinar-image

    Joshua Milner, M.D.
    “Update on Tryptase Research”

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  • webinar-image

    Delia Chiaramonte, MD
    “Practical Stress Management: A Mind-Body Approach”

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  • webinar-image

    Manu Sood, MD
    Katja Kovacic, MD
    “Gastrointestinal Motility Disorders and Cyclic Vomiting”

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  • webinar-image

    Gisela Chelimsky, MD
    “Hypermobile EDS and Gastrointestinal Issues”

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  • webinar-image

    Pradeep Chopra, MD
    “Management of complex pain in children and adults with EDS”

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  • webinar-image

    Pradeep Chopra, MD
    “EDS Pain Management – Connecting the DOTS… part 3”

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  • webinar-image

    Dr. Ajoy Sarkar
    “Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”

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  • webinar-image

    Sara Williams, PhD
    “Biofeedback: Training your Body to Relax”

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  • webinar-image

    Jan Dommerholt, DPT
    “Physical Therapy for EDS – Part 2”
    Why does it hurt all of the time?

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  • webinar-image

    Markus-Frederik Bohn, PHD
    “Tenascin X and Ehlers-Danlos Syndrome”

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  • webinar-image

    Dr. Marco Castori

    “Multidisciplinary Diagnostic and Management Approach to the EDS Patient”

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  • webinar-image

    Professor Claude Hamonet and Dr. Isabelle Brock

    “A French Perspective on Ehlers Danlos”

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  • webinar-image

    Dr. Delia Chiaramonte

    “An Integrative Approach to Pain Management”

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  • webinar-image

    Dan Doherty — YouScript / Genelex Corp.

    “Pharmacogenetic Testing to Assess Altered Drug Metabolism”

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  • webinar-image

    Dr. Alan Pocinki

    “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”

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  • webinar-image

    Dr. William Ericson

    “Orthopedic Issues in the EDS Hand, Wrist and Arm”

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  • webinar-image

    Dr. Norman Marcus

    “EDS & Pain”

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  • webinar-image

    Dr. Lawrence Afrin

    “Mast Cell Activation Syndrome”

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  • webinar-image

    Diane O’Leary, PhD

    “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

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  • webinar-image

    John Ferman and Deanna Hamm

    “World-Wide EDS Survey Results” by EDS Awareness
    (2544 respondents from 26 countries)

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  • webinar-image

    Sara Williams, PhD

    “Cognitive Behavioral Therapy as a Coping Skill for EDS”

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  • webinar-image

    Dr. Anne Maitland

    “Mast Cell Activation Syndrome in EDS Patients (Part 2)”

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  • webinar-image

    Dr. Neil Schechter

    “Chronic Pain Hypermobile Children”

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  • webinar-image

    Karen Foulks, OTR/CHT
    Jesse Garris, Silver Ring Splint Co.

    “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

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  • webinar-image

    Dr. Holly Gilmer

    “Chiari Malformation in EDS”

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  • webinar-image

    Dr. Blair Grubb

    “Postural Orthostatic Tachycardia Syndrome (POTs)”

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  • webinar-image

    Trish Meegan, DPT, L, ATC

    “Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”

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  • webinar-image

    Dr. Patrick Agnew

    “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)”

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  • webinar-image

    Dr. Petra Klinge

    “Tethered Cord Syndrome in Ehlers-Danlos”

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  • webinar-image

    Kelly Clancy, OT

    “New and Emerging Manual Therapy Approaches for EDS”

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  • webinar-image

    Dr. Clive Bridgham

    “Chronic Pain Alternatives – with focus on inflammation and nutrition”

    Learn More

  • webinar-image

    Kevin Muldowney, MSPT

    “Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)

    Learn More

  • webinar-image

    Dr. Mitzi Murray

    “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

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  • webinar-image

    Ellen Lenox Smith

    “Living Life Again with Dignity Using Medical Marijuana”

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  • webinar-image

    Dr. Joan Stoler

    “Update on Complications and Rare Forms of EDS”

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  • webinar-image

    Jennifer Ortiz, MPT, WSC

    “Physical Therapy for Sexual Dysfunction in EDS”

    Learn More

  • webinar-image

    John Ferman

    “Support Groups for Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Dr. John Mitakides

    “Musculoskeletal Headaches in EDS”

    Learn More

  • webinar-image

    Dr. Patrick Agnew

    “Foot & Ankle Issues with EDS”

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  • webinar-image

    Dr. Hal Dietz

    “Connective Tissue Disorder Research”

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  • webinar-image

    Dr. Theoharis Theoharides

    “Mast Cell Disorders”

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  • webinar-image

    Dr. Brad Tinkle

    “Introduction to Ehlers-Danlos Syndrome”

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  • webinar-image

    Dr. Ronald Jaekle

    “Ehlers-Danlos and Pregnancy”

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  • webinar-image

    Dr. Manu Sood

    “Gastrointestinal Disorders in EDS”

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  • webinar-image

    Dr. Forest Tennant

    “Managing Centralized Intractable Pain in Ehlers-Danlos”

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  • webinar-image

    Cynthia Allen, GCFP, STMI

    “The Feldenkrais Method”

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  • webinar-image

    Dr. Mark E. Lavallee

    “Exercise is Medicine”

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  • webinar-image

    John Ferman

    “Support Groups for Ehlers-Danlos Syndrome”

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  • webinar-image

    Dr. Howard R. Epps

    “Orthopaedic Considerations in EDS”

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  • webinar-image

    Jan Dommerholt, DPT

    “Physical Therapy for Ehlers-Danlos, Part 1”

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  • webinar-image

    Dr. Henry Burkholder

    “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

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  • webinar-image

    Dr. Peter Byers

    “Vascular Ehlers-Danlos Syndrome / EDS type IV”

    Learn More

  • webinar-image

    Subinoy Das, MD, FACS, FARS

    “Sinus Care for Ehlers-Danlos Syndrome”

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  • webinar-image

    Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT

    “Dry Needling for EDS Pain Management: Can muscle performance be improved?”

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  • webinar-image

    Diana Lebron, MD

    “Headaches and Ehlers-Danlos Syndrome”

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  • webinar-image

    Shweta Dhar, MD, MS, FACMG

    “Coordination of Care in Adults with EDS”

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  • webinar-image

    Kathleen Kane, ESQ

    “Applying for Disability”

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  • webinar-image

    Dr. Richard Barnum
    “EDS and Psychiatric Illness Misdiagnoses”

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  • webinar-image

    Dr. Anne Maitland
    “Mast Cell Activation Syndrome” Part 1

    Learn More

  • webinar-image

    Dr. Alan Pocinki
    “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

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  • webinar-image

    Dr. Derek Neilson
    “Proving the obvious: Next Steps for the Demystification
    of the Ehlers-Danlos Hypermobility Type”

    Learn More

  • webinar-image

    Dr. Peter Rowe
    “Managing Orthostatic Intolerance in EDS”

    Learn More

  • webinar-image

    Prof Joel Lamoure, RPh., DD., FASCP
    “Medical Psychiatry in Pain Management”

    Learn More

  • webinar-image

    Eric Palmer, Orthotist
    “Bracing for EDS”

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  • webinar-image

    Dr. John Mitakides
    “TMJ, Cervical Instability and EDS”

    Learn More

  • webinar-image

    Dr. Staci Kallish
    “Cardiac Manifestations in EDS”

    Learn More

  • webinar-image

    “EDS and Pain… Connecting the Dots” Part 2

    Pradeep Chopra, MD

    Learn More

  • webinar-image

    Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page

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  • webinar-image

    Presenter: Michael, Healy, DPT Click here for a link to the announcement page  Video link is on this page

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  • webinar-image

    Dr. Kenneth Goldschneider
    Pain Management for EDS

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