5th Annual New England Marfan Syndrome and Connective Tissue Disorders Symposium

Join us on Saturday, September 13, 2014  in Manchester, NH. 

A full day discussion for patients, family, and healthcare professionals addressing Marfan Syndrome, Ehlers-Danlos, Loeys-Dietz Syndrome, and other related connective tissue disorders
 
Supported by Ambrey Genetics, The Marfan Foundation, MA Chapter and the NH/VT Network of the Marfan Foundation

Drs. Hal Dietz and Brad Tinkle are the keynote speakers. Topics include Marfan syndrome, Loeys-Dietz syndrome, Ehlers-Danlos syndrome, pain management, growing older with connective tissue disorders, preparing for surgery, applying for Social Security Disability, genetic testing, and more.

SCHEDULE:
  
7:30 am Registration
8:00 am Welcome………………………………………………………… Kathleen Ackroyd & Rene Jones

General Session/Keynote:
8:15 am Marfan Syndrome & Loeys-Dietz Syndrome…………………………………….Hal Dietz, MD
9:30 am Ehlers-Danlos Syndrome……………………………………………………Brad Tinkle, MD, PhD
10:15 am Ask the Experts………………………………………………….Hal Dietz, MD/Brad Tinkle, MD

10:30 am Break

10:45 am Preparing for Aortic Surgery……………………………………………………George Tolis, MD
11:30 am Pain Management…………………………………………………………….Pradeep Chopra, MD
12:15 pm Ask the Experts………………………………………George Tolis, MD/Pradeep Chopra, MD

12:30 pm Lunch on your own (on-site dining options are available)

1:30 pm Medical Insurance and Disability Issues………………………………….Kathleen Kane, Esq.
2:30 pm The Role of Alternative Methods in the Treatment of Chronic Pain………..Krista Brack

Break out Sessions

3:15 pm: Genetic Counseling & Testing……………………………..Stephanie Gandomi, MS,CGS 

               Communicating with your Doctor…………Kathleen Ackroyd, NH/VT Marfan Network 

               Getting Involved: The Marfan Foundation……………………..Jennifer Buffone, LCSW  

 4:00 pm Adjourn

 ***  Game room and activities are available for children ages 6-17.  Advance registration is required for children ***

 For directions, event updates, and online registration, click here. If you have a special need, please contact Kaddy Ackroyd at kaddy1953@gmail.com or Rene Jones at coordinator@nhvtmarfan.org. Registrations are nonrefundable and nontransferable. Photos will be taken throughout the Symposium for use by the Marfan Foundation.  

REGISTER NOW! ONSITE REGISTRATION AVAILABLE IF SPACE ALLOWS

http://www.marfan.org/get-involved/updates/events/2014/09/13/5th-annual-new-england-marfan-syndrome-and-connective-tissue#.U_yzQU3D8dX