What Does this Logo Mean?
Have you ever looked at logos and considered that they may have a hidden meaning or inspiration behind their creation?
Our favorite brands may hold hidden messages behind the fancy artwork. To uncover the meaning embedded in the EDS Awareness logo, we asked John Ferman, the co-founder of EDS Awareness (Chronic Pain Partners).
John Ferman is the president of EDS Awareness, a non-profit 501(c)(3) organization. Partnering with his daughter Deanna, who has hEDS, they created the Ehlers-Danlos Awareness program in 2011 to help support those with a genetic disorder called Ehlers-Danlos Syndromes (EDS). EDSawareness.com is an online resource for the Ehlers-Danlos Syndromes community, individuals suffering with EDS and their caregiver networks.
They help create local, independent EDS Support Groups and have a network of more than 100 groups in the contiguous US (plus 3 in Australia, 3 in Canada, 1 in UK and 1 in Alaska.)
This totally free program hosts live webinars monthly. These >65 educational videos are presented by experts in this field, many of whom serve on the International Consortium on EDS and Related Disorders. These EDS medical experts span 18 specialties and address more than 50 topics affecting EDS patients.
The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndromes by patients, the general public and within the medical community – in order to improve the quality of life for those affected by EDS – and those who care for them.
Website content is presented “by EDSers, for EDSers” – therefore, it is driven by user participation and learning – for the benefit of all EDSers. The greater the participation, the greater the value to the whole community.
What are Ehlers-Danlos Syndromes?
“Ehlers-Danlos Syndromes are a group of disorders that affect the connective tissues that support the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of Ehlers-Danlos syndromes, which vary from mildly loose joints to life-threatening complications. Although it is difficult to estimate the overall frequency of Ehlers-Danlos syndromes, the combined prevalence of all types of this condition may be about 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common.”
Ehlers-Danlos Syndromes (EDS) are a genetic defect in collagen protein (the “glue” that supports and holds the body together). EDS causes chronic pain, joint hypermobility (“double-jointedness” and fragile joints) and affects multiple other body systems. There is no Pill or “fix”- no medicine or surgery – that resolves this condition. Many of those suffering from EDS are never diagnosed during their lifetimes.
So what does this logo mean?
Simply illustrated, this is “The EDS Pill” with the ingredients to help all of us with Ehlers-Danlos Syndromes better cope with the day-to-day challenges to manage this debilitating disorder.
Note, it is wrapped with a “Golden Ribbon”.
These ingredients include:
- Companionship with those who “get it” though our expanding network of independent, local EDS Support Groups
- Shared resources: articles, local groups’ websites/meetings and facebook communications
- Education by a group of generously caring EDS specialists who volunteer their time to present our webinars and local EDS Support Group Meeting speaking engagements
- Promotion of EDS awareness on a local and national level with activities and public services
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