This Young Woman Dislocates Her Shoulder Up to 10 Times a Day By Just Sneezing!

Lauren Harry

Lauren Harry

Lauren has not been diagnosed with EDS yet. But she has many of the symtoms.  Trying to work with this disorder can be difficult.

  • “- This Genetic condition means  Lauren’s collagen is too weak to support her joints
  • – She goes to work  at McDonalds even when she is in pain
  • – Doctors dislocated Lauren’s elbow by accident while relocating her shoulder “

 

“A crippling condition means Lauren Harry  dislocates her shoulders every time she sneezes. A  cough, or the slightest jolt – even driving over a speed bump – can knock them  out of their sockets.

Lauren, 20, says her shoulders can dislocate  ten times a day. She’s been to A&E  four times in the last week alone.

Doctors believe she has Ehlers-Danlos  syndrome, a genetic condition which means her collagen is too weak to hold her  limbs in place.

Lauren, from Wrexham, north Wales, first  experienced pains in her legs at the age of 11, but was told it was due to  growing pains.

But at the age of 15 she fell off her  crutches while attending the Eisteddfod in Conwy, injuring her shoulder in the  process.

Since then her shoulders and other joints,  including her knees and fingers, have regularly dislocated.

Lauren, who moved to Brymbo from Connah’s  Quay last year, was unable to complete her AS levels because of her  condition.

She has been given stabilising surgery on her  shoulders on five separate occasions at Wrightington Hospital, Lancashire, but  the problems persist.

Lauren, who works at a McDonald’s drive thru  in Chester, said: ‘My shoulders dislocate around 10 times a day on each shoulder  even if I cough, sneeze or go over a speed bump.

THE DISLOCATION  DISORDER

Ehlers-Danlos syndrome  (EDS) is a group of inherited disorders that affect the connective  tissues.

Most types of the  genetic condition affect the production of collagen, which gives tissue strength  and allows it to stretch.

Collagen is found in tendons, ligaments,  cartilage, skin, bone, blood vessels, the gut and the spine.

It means joints are  loose and unstable and prone to dislocating. Swelling, sprains and  hyperextension are also common.

Skin is soft and  fragile and bruises easily. This leads to slow and poor wound  healing.

There is no known cure  for EDS. Treatment may help to manage symptoms, such as surgery to repair muscle  damage and medication for pain.

Sufferers can wear  joint braces, do physical therapy to strengthen joints, avoid very physical  activities and wear sunscreen to reduce the risk of  harm.

‘The other day in work I opened the fire door  and dislocated all of my fingers and I’ve dislocated them pushing myself up off  the sofa before.

‘I can’t even play fight with my little  sister without something dislocating.

‘Because I work in Chester I’m back and to  from A&E at Wrexham Maelor Hospital and the Countess of Chester all the  time,’ she said.

‘I went into A&E last week and they  relocated my shoulder but dislocated my elbow and that’s never happened before.  It’s so easily done.

‘I’ve had a few operations which have fixed  it for a while, but not for longer than nine months with no  dislocation.’

Lauren has yet to be tested for  Ehlers-Danlos, but is currently seeking funding for specialist treatment at The  Royal National Orthopaedic Hospital in Stanmore.

She said: ‘The more times I go to the doctors  they all say it sounds like Ehlers-Danlos.

‘Usually you have to stay on a waiting list  for a year for blood tests, but if I go to Stanmore I can get tested straight  away.

‘I know they teach you coping techniques to  relocate your joints more effectively and also try and help with the  psychological side.’

Despite her condition Lauren says she tries  to make sure it doesn’t prevent her from leading a normal life.”

Lauren has yet to be tested for Ehlers-Danlos, but is currently seeking funding for specialist treatment at The Royal National Orthopaedic Hospital in Stanmore. She said: ‘The more times I go to the doctors they all say it sounds like Ehlers-Danlos Syndrome.

Click here to read more about Lauren’s condition

 

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