Posted on August 17, 2016
Dr Pocinki’s webinar has given me HOPE! and the next webinar ties right in with everything I have gone through, so I just wanted to say a special thank you for putting these webinars out there for those of us in search of answers. I hope and pray I can bring these answers back to my […]
Posted on August 6, 2016
Deanna, My daughter LOVED meeting you!!! She talked about how much she appreciated having someone who understands how she feels to talk to. In fact, she talked about how grateful she was to meet you almost the whole way home!! It was so nice to finally see HOPE in her eyes and not fear. I […]
Posted on August 2, 2016
Our Alaska group is expanding very rapidly this past year. Up to nearly 50 members now due to the way I’ve outreached thru a pain management specialist and some other providers. It’s wonderful. Right now Alaska is getting cold and snowy. Our outdoors meets will be slowing down. More of our members are getting surgical procedures […]
Posted on July 22, 2016
I have learned a lot because of your webinars and “all that you do you to make a difference in my life and the lives of so many”Thank you for everything you do to help others.
Posted on July 21, 2016
Hello John, Deanna and All at EDS Awareness! Thank You -Again and Again! Your webinars continue to help our family and make measurable strides! 🙂 With continued gratitude for your finding a way to help physicians and others understand the care needs among our population and for all with connective tissue disorders.
Posted on July 12, 2016
John, my world has evolved immensely since you sent me an email a year and a half ago. I have EDS, dysautonomia, Mast Cell, etc. The information and lectures your organize provides have been invaluable. I will be at the conference in Baltimore and saw your name on the list of attendees. I really hope to […]
Posted on July 12, 2016
If any doctor says there is no treatment for EDS and that you don’t need pain medication, give them the www.edsawareness.com website and tell them there is treatment and pain medication is necessary and they can see for themselves by watching the presentations of EDS specialists dealing with treatment, pain. PT and many, many other […]
Posted on July 10, 2016
John – Thank you for all that you are doing to help with EDS awareness. You must be as busy in retirement as you were during your career – it is a lot to take on and much appreciated.
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