Monica H. in Sweden

Thank you so much for doing the EDS Awareness World-Wide Survey! Very interesting results.  I am an EDS patient advocate in Sweden and I wonder if it would be possible to get an extract of the Swedish participant´s  survey results?
We have for a long time been thinking of doing a similar survey in Sweden, but I realize that after your excellent survey we wouldn´t really have to since you seem to have covered everything. 🙂  Best regards,

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How long until you received a proper diagnosis for EDS?

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