Kathi

Hello John, Deanna and All at EDS Awareness!
Thank You -Again and Again!
Your webinars continue to help our family and make measurable strides! 🙂
With continued gratitude for your finding a way to help physicians and others understand
the care needs among our population and for all with connective tissue disorders.

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Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
  • 2-5 years (13%, 665 Votes)
  • 5-10 years (12%, 652 Votes)
  • 1 year (5%, 264 Votes)

Total Voters: 5,311

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