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Supporters of Grace Ehrbar, a Cleveland member with VEDS who ran the Cleveland Marathon in May for EDS Awareness

Posted on June 27, 2016

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Ehlers-Danlos Hoofbeat Run Walk-N-Roll included a 1 mile run/walk/roll, a 5K run/walk and a ½ marathon run on August 6, 2016 in King Ferry, NY. CLICK to learn more.

Posted on June 21, 2016

Add Comment | Comments Off on Ehlers-Danlos Hoofbeat Run Walk-N-Roll included a 1 mile run/walk/roll, a 5K run/walk and a ½ marathon run on August 6, 2016 in King Ferry, NY. CLICK to learn more.

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Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
  • 2-5 years (13%, 665 Votes)
  • 5-10 years (12%, 652 Votes)
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