Subluxating and Dislocating Joints

Posted by Springsong
This is a difficult issue to deal with for those with Ehlers-Danlos Syndrome.

EDS thumb“In the past I was very naïve over subluxation & dislocation of joints thinking that it would only happen in cases of extreme injury, boy was I wrong [sighs].  My first instance of dislocation occurred around my teens, I was swimming & the water temperature gave me cramp (which may have been down to my more recently confirmed Raynauds), next thing I know I’m looking at my foot & my big toe is bent at right angles & I’m having to gently massage my foot to coax it back into place [Eeek!!!]. Well this used to happen on rare occasions from here on, I’d get cold or sit awkwardly & next thing I know there it would go again [rolls eyes]. More recently however, it’s now not so much my feet but my hands that are suffering. I don’t even really know why [sighs], I’ll be fine one moment & the next my little fingers are bent & locked in awkward, painful positions before I coax them back into place [Ouch!!!]. It is happening on an ever increasing basis making it sometimes awkward & painful trying to eat, hold my children, drive our car or perform other simple tasks :'(.  The added frustration comes when the Dr/GP simply states ‘That’s part of your EDSH/HMS’ & that’s that, we’re expected to deal/manage with it :(. I don’t know what I’d expect instead – medications, more physiotherapy, corrective operations?….[sighs]. It would just be nice sometimes to hear ‘Oh yes, I can help you with that’ rather than ‘You’ll have to learn to deal with it’. Ok, rant over, time I grab a cuppa” ;)

How many times have we heard this message  – ‘That’s part of your EDS & that’s that, we’re expected to deal/manage with it.”?

Click here for the Original source of this blog

We appreciate your Comments and Likes

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...