One of the other issues discussed was the upcoming conference. I cannot stress enough the value of these conferences- I encourage everyone to try to make one as it is an experience like no other. If you sign up early the registration is lower, you still have hotel and flights but I feel for most of us it is worth it especially if you can sign up for one of the one on one consults- these book quickly.

If you can’t get a consult- not to worry- our doctors WANT to be there and THEY WANT to meet and talk to you. They make themselves available in the lobby of the conference space and patients love being able to seek guidance for care, ask questions and get validation.

The Silver Ring Splint company is there as well and does sizing and recommendations for splints if this is something you need, Bauerfeind and Mueller are there for you to try braces and get measured. Our EDS Awareness group is represented and so much more!

I encourage you to think about going- this year is Las Vegas and while that is a bit of a haul- flights can be found for a relatively lower cost. We may have folks who will make it by driving so let us know if this is what you want to do and we can pair you up to plan your cross country trek.

And now for the big issue- THE COST!

As a group we talked about fundraising for a scholarship fund for those who may need some financial assistance to get there. Please think of your resources and what you can do and let us know. I will be reaching out to my company to see if I can get buy in to run a campaign for our local RDU office- we have about 600 folks there who have historically been supportive.

RDU EDS Awareness is under the national EDS Awareness group which is a 501 C (3) organization which means we are a public charity.

So let’s get creative and fund our Dazzle so we can get more of us to the annual conference.

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