Books

 

 

 

Kevin MuldownDr Muldowney book coverey, MsPT has been treating people with Ehlers-Danlos Syndrome since 2005. As a physical therapist, he has developed an exercise protocol to help stabilized the many joint subluxations/dislocations associated with this genetic disorder. This book is intended for the person diagnosed with EDS to both inform them about the healthcare team needed to properly treat them as well as to guide both the physical therapist and their patient with EDS through the Muldowney exercise protocol. This book will cover such topics as: how joints sublux in this population, how to find the right physical therapist, how to exercise without injury and what physical therapy techniques works best. By the end of this protocol people with EDS should be better informed about what is going on with their body and how to make it better.

 

 

 

The definitive book on Ehlers Danlos Dr Tinkle is a rare gem in the CTD world. Those of us with a Connective Tissue Disorder know how difficult it is to find a physician who in truly informed and engaged in up to date, appropriate treatment for these conditions. Dr Tinkle is amazingly available to his patients and truly cares about each individual he sees.

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This book is a must have for anyone with Hypermobility, there’s nothing like hearing it first hand from someone who’d been through it all. I’d say this book is a must as well for every doctor who’d dismissed someone with hypermobility issues saying it’s all in your head, or made some weird misdiagnosis just to give the patient something to go home with (The ones who didn’t tell me “it’s all in your head” gave me some pretty funny diagnosis, each doc gave a different one, when I asked for what they based that on and if any of my tests had shown that, the common reply was “No, but what else could it be”??!!!  Pretty scientific and logical reasoning, huh?

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If you have been diagnosed as being hypermobile and your doctor doesn’t seem to think it’s all that important then you need to buy this book. Read this book. Then buy a copy for your doctor and make him/her read it. HMS is an all too common condition that often goes unoticed, untreated, and misunderstood by most doctors and even the patients themselves.
This book won’t give you a quick and easy cure for your condition. Such a thing doesn’t exist right now. However, if you’re like me and you’re looking for answers as to why your body feels like it’s falling apart when you’re living a gernerally healthy life, you will find them in this book. It doesn’t gloss over details or assume you’re too dumb to understand medical terms. It doesn’t tell you it’s all in your head or maybe you should just relax and not get so upset over aches and pains. I’ve heard these things from so called “real” doctors and now I’ll think twice before believing everything my doctors say.

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There are so few texts on Ehlers-Danlos Hypermobile type and Hypermobility Syndrome. When you read this book  it speaks volumes to JHS and less so to Fibromyalgia. Chronic Pain is evident in both entities for sure. But  this is a sophisticated work, and excellent work for which I am very very grateful.

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Upcoming and Previous Webinar Speakers

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    April 18, 2017
    Pradeep Chopra, MD
    “EDS Pain Management – Connecting the DOTS”

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    Dr. Ajoy Sarkar
    “Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”

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    Sara Williams, PhD
    “Biofeedback: Training your Body to Relax”

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    Jan Dommerholt, DPT
    “Physical Therapy for EDS – Part 2”
    Why does it hurt all of the time?

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    Markus-Frederik Bohn, PHD
    “Tenascin X and Ehlers-Danlos Syndrome”

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    Dr. Marco Castori

    “Multidisciplinary Diagnostic and Management Approach to the EDS Patient”

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    Professor Claude Hamonet and Dr. Isabelle Brock

    “A French Perspective on Ehlers Danlos”

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    Dr. Delia Chiaramonte

    “An Integrative Approach to Pain Management”

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    Dan Doherty — YouScript / Genelex Corp.

    “Pharmacogenetic Testing to Assess Altered Drug Metabolism”

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    Dr. Alan Pocinki

    “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”

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    Dr. William Ericson

    “Orthopedic Issues in the EDS Hand, Wrist and Arm”

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    Dr. Norman Marcus

    “EDS & Pain”

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    Dr. Lawrence Afrin

    “Mast Cell Activation Syndrome”

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    Diane O’Leary, PhD

    “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

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    John Ferman and Deanna Hamm

    “World-Wide EDS Survey Results” by EDS Awareness
    (2544 respondents from 26 countries)

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    Sara Williams, PhD

    “Cognitive Behavioral Therapy as a Coping Skill for EDS”

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    Dr. Anne Maitland

    “Mast Cell Activation Syndrome in EDS Patients (Part 2)”

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    Dr. Neil Schechter

    “Chronic Pain Hypermobile Children”

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    Karen Foulks, OTR/CHT
    Jesse Garris, Silver Ring Splint Co.

    “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

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    Dr. Holly Gilmer

    “Chiari Malformation in EDS”

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    Dr. Blair Grubb

    “Postural Orthostatic Tachycardia Syndrome (POTs)”

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    Trish Meegan, DPT, L, ATC

    “Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”

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    Dr. Patrick Agnew

    “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)”

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    Dr. Petra Klinge

    “Tethered Cord Syndrome in Ehlers-Danlos”

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    Kelly Clancy, OT

    “New and Emerging Manual Therapy Approaches for EDS”

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    Dr. Clive Bridgham

    “Chronic Pain Alternatives – with focus on inflammation and nutrition”

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    Kevin Muldowney, MSPT

    “Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)

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    Dr. Mitzi Murray

    “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

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    Ellen Lenox Smith

    “Living Life Again with Dignity Using Medical Marijuana”

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    Dr. Joan Stoler

    “Update on Complications and Rare Forms of EDS”

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    Jennifer Ortiz, MPT, WSC

    “Physical Therapy for Sexual Dysfunction in EDS”

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    John Ferman

    “Support Groups for Ehlers-Danlos Syndrome”

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    Dr. John Mitakides

    “Musculoskeletal Headaches in EDS”

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    Dr. Patrick Agnew

    “Foot & Ankle Issues with EDS”

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    Dr. Hal Dietz

    “Connective Tissue Disorder Research”

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    Dr. Theoharis Theoharides

    “Mast Cell Disorders”

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    Dr. Brad Tinkle

    “Introduction to Ehlers-Danlos Syndrome”

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    Dr. Ronald Jaekle

    “Ehlers-Danlos and Pregnancy”

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    Dr. Manu Sood

    “Gastrointestinal Disorders in EDS”

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    Dr. Forest Tennant

    “Managing Centralized Intractable Pain in Ehlers-Danlos”

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    Cynthia Allen, GCFP, STMI

    “The Feldenkrais Method”

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    Dr. Mark E. Lavallee

    “Exercise is Medicine”

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    John Ferman

    “Support Groups for Ehlers-Danlos Syndrome”

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    Dr. Howard R. Epps

    “Orthopaedic Considerations in EDS”

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    Jan Dommerholt, DPT

    “Physical Therapy for Ehlers-Danlos, Part 1”

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    Dr. Henry Burkholder

    “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

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    Dr. Peter Byers

    “Vascular Ehlers-Danlos Syndrome / EDS type IV”

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    Subinoy Das, MD, FACS, FARS

    “Sinus Care for Ehlers-Danlos Syndrome”

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    Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT

    “Dry Needling for EDS Pain Management: Can muscle performance be improved?”

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    Diana Lebron, MD

    “Headaches and Ehlers-Danlos Syndrome”

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    Shweta Dhar, MD, MS, FACMG

    “Coordination of Care in Adults with EDS”

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    Kathleen Kane, ESQ

    “Applying for Disability”

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    Dr. Richard Barnum
    “EDS and Psychiatric Illness Misdiagnoses”

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    Dr. Anne Maitland
    “Mast Cell Activation Syndrome” Part 1

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    Dr. Alan Pocinki
    “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

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    Dr. Derek Neilson
    “Proving the obvious: Next Steps for the Demystification
    of the Ehlers-Danlos Hypermobility Type”

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    Dr. Peter Rowe
    “Managing Orthostatic Intolerance in EDS”

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    Prof Joel Lamoure, RPh., DD., FASCP
    “Medical Psychiatry in Pain Management”

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    Eric Palmer, Orthotist
    “Bracing for EDS”

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    Dr. John Mitakides
    “TMJ, Cervical Instability and EDS”

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    Dr. Staci Kallish
    “Cardiac Manifestations in EDS”

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    “EDS and Pain… Connecting the Dots” Part 2

    Pradeep Chopra, MD

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    Ehlers-Danlos Spectrum and Dysautonomia

    Dr. Golder N. Wilson

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    Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page

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    EDS Pain Management. (Part 1)
    Dr. Pradeep Chopra

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    Presenter: Michael, Healy, DPT Click here for a link to the announcement page  Video link is on this page

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    Presenter: Ellen Lenox Smith Click here for a link to the announcement page.  Video link is on this page

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        Presenter:  Carl Mentesana, DDS Click here for a link to the announcement page  Video link is on this page

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    Presenter: Stephanie Gandomi, MS Click here for a link to the announcement page. Video link is on this page

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    Dr. Kenneth Goldschneider
    Pain Management for EDS

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