Kevin Muldowney, MsPT has been treating people with Ehlers-Danlos Syndrome since 2005. As a physical therapist, he has developed an exercise protocol to help stabilized the many joint subluxations/dislocations associated with this genetic disorder. This book is intended for the person diagnosed with EDS to both inform them about the healthcare team needed to properly treat them as well as to guide both the physical therapist and their patient with EDS through the Muldowney exercise protocol. This book will cover such topics as: how joints sublux in this population, how to find the right physical therapist, how to exercise without injury and what physical therapy techniques works best. By the end of this protocol people with EDS should be better informed about what is going on with their body and how to make it better.
The definitive book on Ehlers Danlos Dr Tinkle is a rare gem in the CTD world. Those of us with a Connective Tissue Disorder know how difficult it is to find a physician who in truly informed and engaged in up to date, appropriate treatment for these conditions. Dr Tinkle is amazingly available to his patients and truly cares about each individual he sees.
This book is a must have for anyone with Hypermobility, there’s nothing like hearing it first hand from someone who’d been through it all. I’d say this book is a must as well for every doctor who’d dismissed someone with hypermobility issues saying it’s all in your head, or made some weird misdiagnosis just to give the patient something to go home with (The ones who didn’t tell me “it’s all in your head” gave me some pretty funny diagnosis, each doc gave a different one, when I asked for what they based that on and if any of my tests had shown that, the common reply was “No, but what else could it be”??!!! Pretty scientific and logical reasoning, huh?
If you have been diagnosed as being hypermobile and your doctor doesn’t seem to think it’s all that important then you need to buy this book. Read this book. Then buy a copy for your doctor and make him/her read it. HMS is an all too common condition that often goes unoticed, untreated, and misunderstood by most doctors and even the patients themselves.
This book won’t give you a quick and easy cure for your condition. Such a thing doesn’t exist right now. However, if you’re like me and you’re looking for answers as to why your body feels like it’s falling apart when you’re living a gernerally healthy life, you will find them in this book. It doesn’t gloss over details or assume you’re too dumb to understand medical terms. It doesn’t tell you it’s all in your head or maybe you should just relax and not get so upset over aches and pains. I’ve heard these things from so called “real” doctors and now I’ll think twice before believing everything my doctors say.
There are so few texts on Ehlers-Danlos Hypermobile type and Hypermobility Syndrome. When you read this book it speaks volumes to JHS and less so to Fibromyalgia. Chronic Pain is evident in both entities for sure. But this is a sophisticated work, and excellent work for which I am very very grateful.