Practical Parenting Tips for those with Physical Limitations

by Jennie Macdonald

 As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to keep my house in order while conserving enough strength to be as involved and engaged as a parent as I could be. I found that some days it was necessary to let certain household chores slide so that I could simply play with my child. I also developed some strategies to get things done around the house, while training my daughter to be responsible and engage in age appropriate activities that encouraged the use of fine and gross motor skills. Here’s a few tips I picked up along the way:

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  • Hey Rob, just a quick note..I wouldn’t worry too much about a dingaosis of E-D..essentially it would replace the low tone and hypermobility diagnoses so you’d actually have one less you’re already doing all the right things to support Elliott in terms of OT and stuff so it’s not like he’s been suffering with something that you haven’t been treating. I know this probably doesn’t make you feel much better but thought i’d write. Are they going to test emmett for it as well?Completely unrelated..haven’t you done a video blog once before?Julia

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      I don’t have ED – but am just as broken. You know what I find helps? crynairg a walking stick – it keeps me upright AND makes people aware.I’m only young, 40 – but will have ‘my problems’ for the rest of my life and they’ll only get worse! Not use crying over what might have been – just do it – get on with it – only think about tomorrow when you get there ;)HS

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