Petition in Ireland: Ehlers-Danlos “Treatment Abroad Scheme”
Hello, my name is Jordan Egan, I’m 16 years old and I live in Ireland. I have Ehlers Danlos Syndrome and other associated conditions, Irish EDS patients have no access doctors that are familiar with the condition in Ireland and because of this many people have to travel to London for treatment. The Irish health service will not fund this trips and people end up paying thousands of pounds on consultants fees.
Thank you,
Jordan Egan