About the Oregon Area EDS Support Group

We are a steadily growing group of patients with Ehlers-Danlos Syndrome and their families and friends in the greater Oregon area in the US Pacific Northwest seeking to support one another in our journeys with this challenging condition. We meet quarterly (January, April, July, October) at various places, some public, some private as people and resources allow. These meetings are usually educational in nature, but sometimes we just meet to have fun and support one another as able. We are seeking to form a 501c-3 once we have enough active interest and funding. Anyone interested in helping us further that goal is welcome to join us in the effort. As well as anyone newly diagnosed or “wondering” (an all too common experience). Learn more at http://oreds.org or email info [at] oreds.org.

We are very grateful to Governor John Kitzhaber for officially recognizing May 2013 as Ehlers-Danlos Awareness Month for the State of Oregon in an official Proclamation!

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