Former Competitive Gymnast Shares Ups and Downs of EDS
Former competitive gymnast, J Murphy, continues her challenges with Ehlers-Danlos Syndrome. She has had several surgeries and shares her experiences with EDS. Recently, she celebrates that she is brace-free for the first time in 3 years!
“My symptoms haven’t changed. My headaches are still bad but there is not much I can really do about it right now.
Shoulder: My shoulder is really bad but I am waiting 6-12 months for surgery because of my head/neck! It doesn’t stay in place and I usually wake up with it completely dislocated. My arm is also typically numb and when it dislocates, more often then not, I am left with the “dead arm” feeling. I will probably need to utilize a sling more often to protect the nerves and take some pressure off.
Ankle: The newly reconstructed ankle still hurts and is still pretty swollen. It’s also still a little bruised and I still have pooling problems. The swelling is surprising because I am nearly 6 months post-op. I am also a little surprised that I still have as much pain as I do. My ROM is still very limited but I am no longer in a brace and it feels great to be “free.” The stability is definitely not an issue on the right side. The left ankle is still unstable but nothing needs to be done at the time.
Hips and Knees: All I am going to say is, they hurt….a lot! Also, I am no longer in a knee brace!
I am brace free for the first time in 3 years!”
She is a brave lady who shares stories of her struggles and successes with EDS. Many EDSers are former athletes and are still motivated to make their lives better.