Teenager Excels Despite Ehlers-Danlos Syndrome
Many people diagnosed with Ehlers-Danlos Syndrome look healthy. Most appear to be athletic, and they are intelligent and motivated to accomplish much in their lives. Melissa Rose is just that type of person. The reality is that this disability is challenging and can definitely slow you up.
“Fatigued hands, sore joints, back pain, easily bruised skin and overly stretchy skin – Melissa Rose had all those symptoms for years and had no idea why.
Melissa Rose (pictured) is ASB president, president of the Key Club (a service club) and she plays alto saxophone in the Jazz Band, Marching Band and the Symphonic Winds.
An A student, the Hemet teen trudged on, just dealing with her symptoms for years because she had no choice.
It wasn’t until Melissa was a freshman in high school that she was finally diagnosed with a rare condition called Ehlers–Danlos Syndrome (EDS). EDS is a group of inherited connective tissue disorders caused by a defect in the synthesis of collagen. The collagen in connective tissue helps tissues to resist deformation. Depending on the individual, the severity of the syndrome can vary from mild to life threatening. Symptoms include joint pain and dislocation, and stretchy skin that bruises easily, among others.”
Melissa Rose is a brave young lady and she will make a difference in her life and others she touches.
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