Kristin Means Discusses Her Journey with EDS

Many Ehlers-Danlos Syndromes (EDS) experts believe that its prevelance is higher than once thought. Estimates range from 1 in 500 to 1 in 100.   Dr. Fraser C. Henderson, Sr., MD, comments in this video that “1 in 10 Americans have hypermobility connective tissue disorders. That’s 30 million people – and we don’t know exactly how many are afflicted with EDS. Many of them suffer daily with invisible pain and chronic fatigue.” Ehlers-Danlos Syndrome must be diagnosed by a knowledgeable Geneticist. Tell someone about EDS today!

Click here for more about Kristen Means’ journey

Click here for more about Dr. Fraser C. Henderson, Sr., MD

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How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
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