iTunes song helps fund EDS treatment for Irish teen
Jordan is seeking creative ways to pay for her EDS treatment. Her iTunes song may help the teenager fund EDS treatment which is not covered in Ireland.
by Naomi Linehan
Jordan Egan is 16 years old and suffers from a rare genetic disorder which means she suffers from chronic pain. Sometimes at night she finds it difficult to sleep, so she listens to The Right Hook.
It all began for Jordan 15 months ago when she was playing football with her brother and her cousin. She slipped and fell on her back. Since then she has felt constant pain. She has had a headache for months, which never goes away. She has since been diagnosed with Ehlers-Danlos syndrome.
This means she has to travel to London every six weeks for treatment, as there are no experts to treat her condition in Ireland.
Her family are paying for the treatment themselves as the cost is not being covered by the HSE or any private health insurer.
In order to help cover the costs they have recorded a wonderful song – which is sung by Jordan, penned by her mother Karen, to express how she feels about the whole situation.
Easy for an Angel is available for download on itunes.
Jordan is currently in the top 5 Itunes downloads in Ireland.
To give your support to this wonderful young person all you have to do is click on this link to download Easy for an Angel for just 99c:”
Jordan is traveling to London for her treatment of Ehlers-Danlos Syndrome.
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