Events

Music for Ehlers-Danlos Syndrome Hope Benefit Concert

April 30, 2017

4:00 pm EST

Location: Northern Hills Synagogue 5714 Fields Ertel Road Cincinnati,... Read more...

Ehlers-Danlos Syndrome Awareness for a Cure

June 3, 2017

Come join us!

Hoofbeats 5K 2017 Saturday June 3, 2017 9:00 AM... Read more...

2017 Juvenile Arthritis Camp Programs

US Camps Nationwide

Register now for week long camps

The Arthritis Foundation’s JA camp programs give kids with... Read more...

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Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
  • 2-5 years (13%, 665 Votes)
  • 5-10 years (12%, 652 Votes)
  • 1 year (5%, 264 Votes)

Total Voters: 5,311

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