Music for Ehlers-Danlos Syndrome Hope Benefit Concert

Posted on March 23, 2017

Location: Northern Hills Synagogue 5714 Fields Ertel Road Cincinnati, Ohio 45249 United States April 30, 2017 4:00 pm EST Click here for more information.  

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Ehlers-Danlos Syndrome Awareness for a Cure

Posted on March 15, 2017

Hoofbeats 5K 2017 Saturday June 3, 2017 9:00 AM NHTI – Concord’s Community College 31 College Drive | Concord, NH 03301 Day of Race Registration: 7:30AM Hoofbeats 5K 2017 – g2racereg.webconnex.com g2racereg.webconnex.com Click here to signup on line. Click here for the Hoofbeats flyer

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2017 Juvenile Arthritis Camp Programs

Posted on March 3, 2017

The Arthritis Foundation’s JA camp programs give kids with arthritis, Ehlers-Danlos and related childhood rheumatic diseases the chance to make lasting memories. Our programs provide a safe and secure camping experience for children and teens. Campers gain a greater understanding of their own diagnosis and treatment, develop peer-to-peer support, increase independence and self-confidence, discover new […]

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