How to get the most out of 2013 EDS conference

In this article, Donna reflects on her past conference experience, and shares tips on how to get the most out of the 2013 EDNF conference.  Suggestions include:

  • bring printouts of the speakers’ handouts to take notes on (in a binder)
  • bring your spouse or family member (encourage them to attend sessions & meet other EDSers)
  • plan time to visit the marketplace by skipping a session or two
  • ask relatives to donate to your “saving-for-the-conference” fund –  instead of buying you a holiday or birthday gift.

This was Donna’s 2nd conference, but this year was extra special because her husband attended with her!  The following are some excerpts from her conference review:

…It was great to have my husband there, so he could learn more about EDS and see others with this condition.  The sessions really explain what is going on, problems we are having, how to help alleviate those problems, pain management, coping skills, etc. Since it helps my husband understand better, I really feel he is more patient with me throughout the year…

…There was a panel discussion on the last day during lunch-time, where several of the “star” physicians answered questions written by conference attendees. Seeing those specialists with that wealth of information on the stage at once is pretty awesome! They all seem like wonderful people, and I wouldn’t mind listening to them speak all day long!

It was evident that the conference planners worked diligently to prepare a fantastic conference, from the venue, hotels, sessions, meals, marketplace–everything…

…Of course I always take time to wander through the marketplace.  The EDS Awareness booth was fantastic… There was a great attendance at their table, and I can only imagine how this site is going to blossom and spread! Many people were signing up for local EDS groups, and wanting to learn how to organize a group if none exists in their area…

Click here to read the full article including more tips for how to get the most out of this year’s conference.

The 2012 conference featured a discussion group for spouses. Our impression was that more spouses attended than in past years. Kudos to our supportive caregivers!

Hope to see you in 2013!

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