EDS & Chiari “Unite@Night” Walks in Ohio

 

EDS awareness logo jpeg HI-RES (1)

 unite@night
 westchester walk 2

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The Cincinnati/West Chester, OH Ehlers-Danlos / Chiari unite@night walk was held on May 30th.  We had an over whelming response!  In addition to our group members, the walk attracted more than 75 new EDSers and families! (see flyer for details)
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EDS – CSF’s unite@night walks bring together the families and friends of those affected by Chiari malformation, syringomyelia, EDS and related disorders. The money raised at these walks helps to support our local Chapter, and other CSF Chapters that seek to fulfill CSF’s mission to provide education and increase awareness for these conditions. The proceeds raised are also used to directly fund important research projects that can help improve the diagnosis, treatment and overall quality of life for the patients and families who constantly struggle with these disorders. This is a great way to promote EDS – Chiari Awareness in our local community.
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Your participation in the 2015 unite@night walk will also help fund an international patient database to facilitate larger research studies and improve the likelihood of a future breakthrough in the medical field — which is something that the over one million families affected by these disorders so desperately need.
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For more information, or to register for the West Chester walk, please visit: http://unitenight.kintera.org/westchester.
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We look forward to meeting you there and making a difference together!
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Thank you!
Carrie Murray, Chiari Walk Chairperson
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John Ferman, EDS Walk Chairperson
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P.S.  Can’t join us here? Join one of the other walks in Ohio:
Akron, OH – May 31
Shaker Hts., OH – June 7
Toledo, OH – June 13
Columbus, OH – June 13
Bellefontaine, OH – June 27
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……..or you can also register to do a Solo Walk right in your own backyard! For more information, go to http://csfinfo.org/csf-unite-night/2015-walk-sites/.

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