EDS Awareness is a Way of Life

Viviana Garcia Metendez discusses how she is providing EDS Awareness through videos and blogs.

Thanks, Viviana!  We appreciate your dedication to helping others learn more about Ehlers-Danlos Syndrome.

Click here for more about Viviana

  • This is a comment to the webmaster. I discovered your “EDS Awareness is a Way of Life. I like the site 🙂 Take care.

    • Roberto

      Excellent post. This is something I’ve noted so many times with cotnsinuetts who are asked to fill in these forms – it makes them focus on the many negatives in their lives, when they tend to make the best of things the rest of the time.

  • Thanks for sharing this information with , I will return every month to read more.

    • Thank you so much for your reply. Of the additional symtpoms you mentioned, he has had light sensitivity off and on, but the motion sickness strikes a particular chord as we are usually about 1 or 2 minutes from home and I see he his holding his head sideways in his car seat because he’s discovered that somehow that helps him with his motion sickness. The motion sickness has been constant for at least a couple of years now. I do have copies of all of his medical records and will go through and locate the height/weight and head circumference measurements. I’ll check out the sites you mentioned and look for you at prettyill.com. Thank you so much for your efforts.Diane P. in Cincinnati.

  • Nice thing that I see this website. It really opened my eyes, looking at thing from another perspective

  • This is a comment to the webmaster. I came to your “EDS Awareness is a Way of Life | EDSAwareness.com” page via Google but it was great! 🙂 Take care.

  • Fantastic post however , I was wanting to know if you could write a litte more on this subject? I’d be very thankful if you could elaborate a little bit more. Bless you!

    • Khalid

      Thanks for your humor, I too struggle with ‘you can’t tell by liokong’ and I think it is deep in layered meaning. On the surface it may be a well meaning compliment but what does that as a compliment say about there attuides to disability – it still cuts me as it feels very dismissive of the havoc and impact my condition has on my choices in life.You are fab, fist blog I’m bookmarking!Emma

  • Whats up. Very cool site!! Guy .. Beautiful .. Amazing .. I will bookmark your blog and take the feeds also…I’m satisfied to find a lot of helpful info right here in the article. Thanks for sharing.

    • Regina

      Hi! Thanks so much for sharing this with us all. It’s awsmoee reading this and smiling all the way from understanding, from having been there and it being written for those who haven’t so that we don’t have to repeat another million times at least online for the time being. I was wondering if you’d give me permission to translate it into French? You’re welcome to email me about this and let me know. I’d, of course, refer back to you and your page as the reference. Thanks again! <3

  • celebrar boda

    Interesante post! Muchas gracias.

    • hello, i’m a 37 yr old female dogenisad with fibromyalgia, crohns, you name it. after yrs of my own research and coming across your site, i realized the stories here are all too familiar and that ehlers seems to make more sense. anyway, going to mayo clinic in jacksonville for a week to see a team of specialists. ive all but given up, until now. first time ever finding so many people with so many similar symptoms. i will pray for each of you and plz do the same for me while on my journey to the clinic.

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