Archive for the ‘Therapies’ Category

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Chronic Pain from Ehlers-Danlos Syndrome Leads to a Drastic Decision

Posted on December 26, 2014

Elisha Morgan’s 8-year struggle with severe foot pain lead to an Ehlers-Danlos diagnosis that changed her life. Her doctors exhausted all treatment options. Now, she considers making a very difficult decision … (Part 1 of 3)

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How Yoga Helps Christine Cope with Ehlers-Danlos Pain

Posted on November 26, 2014

Christine has found a method to cope with her Ehlers Danlos Syndrome that works well for her. Practicing gentle yoga has changed the way she thinks and feels about her pain and helps her get back more control over her life.   By Locke Hughes. “Many of us have dealt with a painful injury or illness at some point […]

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Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”

Posted on November 19, 2014

  Watch this FREE educational video presentation!    TOPIC:  “Dry Needling for EDS Pain Management: Can muscle performance be improved?”   PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT   Sponsored by www.bodysupportstore.com      Click here for the video replay!   Links to resources mentioned in the video presentation: Dry needling therapy can decrease pain, click here. Dry […]

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Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014

Posted on October 10, 2014

Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]

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Webinar by Dr. Peter Rowe – Recording available

Posted on July 16, 2014

  EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS.     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording   CLICK HERE for the slides used in this presentation     PRESENTER:   Dr. Peter Rowe is a […]

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Chronically in Pain and in Love – POTS and Ehlers-Danlos Syndrome

Posted on February 10, 2014

The diagnosis was bittersweet. It was good to finally have an answer …. Ehlers-Danlos Syndrome! By Emily McComas CHARLESTON, W.Va. — Kyli Wolfson was losing hope. “For most of her life, she had struggled with a lack of energy. She couldn’t keep up with her peers in middle school gym class and tried to work with […]

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Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Posted on November 13, 2013

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

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EDS Awareness Speaker Series – Alberto Friedmann – Recording

Posted on November 5, 2013

  We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]

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