Archive for the ‘Therapies’ Category
Posted on June 18, 2015
Philip Howard was the 88th person in Britain to be diagnosed with Ehlers-Danlos syndrome (EDS). He has written a book about his fight to overcome adversity. Philip Howard’s new book “An Accident Waiting To Happen” tells of living with a rare condition that leaves him prone to falling over and breaking bones. Ben Blosse reports. […]
Posted on June 9, 2015
A new, closed, Facebook group is available for support of friends who are caring for, supporting or living with people who have hypermobility/ EDS. _ _ If you meet these requirements you can join at www.facebook.com/groups/friends.of.hypermobiles. NOTE: no EDSers will be admitted to the group, it is for support people only so that […]
Posted on April 12, 2015
NPR radio ran a segment on invisible disabilities to commemorate the 25th anniversary of the Americans with Disabilities Act (ADA). While progress has been made, much still needs to be done. Click here for the original broadcast on NPR radio. Join the efforts to spread awareness of ADA on its July 26th anniversary. Resources include this Tool Kit, a project of the ADA […]
Posted on March 17, 2015
Watch this FREE online learning session! Cynthia Allen, GCFP, STMI gave a presentation titled “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”. It focuses on movement techniques to increase your body awareness and learning how to improve your quality of movement. Sponsored by www.bodysupportstore.com Click here for a link to […]
Posted on March 3, 2015
Watch this FREE online learning session! Mark E. Lavallee, M.D presents “Exercise is Medicine – especially for Ehlers-Danlos”. He has EDS, classical type and has lectured at many EDNF conferences.
Posted on February 7, 2015
In response to one mother’s request for help, proposed legislation requiring insurance companies to provide coverage for the costs for service dogs will be considered by lawmakers in Hartford, CT. Roslyn is navigating the process of obtaining a service dog for assistance with her EDS needs. The community is rallying behind her! By Kathleen Schassler, The […]
Posted on January 23, 2015
EDS Awareness invites you to watch this FREE webinar recording! Sponsored by www.bodysupportstore.com TOPIC: “Physical Therapy for Ehlers-Danlos” PRESENTER: Dr. Jan Dommerholt About our speaker: Jan Dommerholt, DPT Jan is a recognized expert in the physical therapy diagnosis and treatment of persons with chronic pain syndromes, including EDS. He has lectured at EDNF patient […]
Posted on January 20, 2015
After being diagnosed with Ehlers-Danlos Syndrome, high-school student Gabrielle found comfort with members of the Young Life organization. She found purpose and motivation through her renewed spiritual connection. “Right after I got diagnosed with Ehlers-Danlos Syndrome (EDS) and figured out I could not play volleyball, I truly was devastated. I felt like I was missing out […]
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