Archive for the ‘survey’ Category
Posted on November 17, 2017
Hello! My name is Katie Bealka, and I am a graduate student in the Brandeis University Genetic Counseling Master’s degree program. I am looking to better what life is like for emerging adults living with Ehlers Danlos Syndrome (EDS), either the classical or hypermobile type, and need your help. Have you been diagnosed with either […]
Posted on August 29, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: Results of the EDS Awareness World-Wide Survey PRESENTERS: John Ferman and Deanna Hamm John Ferman and Deanna Hamm (father and daughter) are co-founders of the EDS Awareness Program. There were 2544 respondents to this World-Wide survey from 26 countries. The specific results were presented and discussed during […]
Posted on April 3, 2016
STATUS: World-wide EDS Awareness Survey — A summary booklet is currently being distributed to doctors and attendees at the EDSI Symposium in New York City. We received > 2500 responses from 26 countries. The data collected from this survey is being analyzed and will be presented in our upcoming webinar scheduled for May 17, 2016. WEBINAR […]
Posted on December 14, 2014
Your input is needed for this very important EDS survey! Follow the link at the bottom of this article to take the survey. This survey on gastrointestinal issues is being conducted by a group of doctors at Beth Israel Deaconess Medical Center / Harvard Medical School. The goal is to better understand the bowel and stomach issues that might […]
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