Archive for the ‘New conference’ Category

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Hypermobile EDS Educational Session – April 21, 2016

Posted on April 2, 2016

Hypermobile Ehlers-Danlos Syndrome Educational Session at Cincinnati Children’s Hospital Medical Center Please join us for an hour long session hosted by Dr. Derek Neilson discussing the diagnosis and management of hypermobile Ehlers-Danlos Syndrome (EDS). Dr. Neilson will review the criteria used to diagnose hypermobile EDS, and discuss general recommendations that help patients with EDS.  He will […]

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Australia’s 1st Ehlers Danlos Syndrome Conference was Attended by 300

Posted on July 26, 2014

It was a well-attended 3-day event!  Australia’s First EDS Conference attracted EDS experts, including physiotherapists, cardiologists, gastroenterologists, and US Geneticist Dr. Brad Tinkle. “Parramatta welcomed the first national conference for Ehlers-Danlos Syndrome (EDS) on July 19 and 20, a debilitating disorder causing fragile joints, skin and muscles. The three day event filled Novotel Parramatta’s Lennox room with almost 300 […]

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Australia’s 1st Ehlers-Danlos Syndrome Conference Coming to Sydney in July 2014!

Posted on April 3, 2014

This is an exciting opportunity for EDSers in Australia to attend their very own Ehlers-Danlos Syndrome Conference!  ConnecTeD Foundation and EDSAUS have been working hard to bring you the best speakers we can find and to offer you the best chance to network with other families and/or persons with EDS or related conditions. With the […]

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Free Mayfield Chiari Center Webinar – April 12, 2014

Posted on April 1, 2014

Chiari Webinar Series Join the Mayfield Chiari Center for a series of free 60-minute webinars addressing topics important to the Chiari community. Held every three months, these webinars offer practical advice for living well with Chiari and syringomyelia. We encourage support group leaders to build activities around our webinars to grow their own groups. April […]

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EDNF Presentation by Shane Robinson, Executive Director

Posted on August 5, 2013

By Diana Cleaveland, Watch this 4-part video series of a presentation given by Shane Robinson, Executive Director of EDNF, to the New England EDS Support Group on June 30, 2013. The topics include: the past and future goals of EDNF and the EDNF Conference held August 1 -3, 2013. Though the videos are fairly long, there is […]

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