Sleep Dysfunction
Up Close and Personal: Our Team’s Favorite Go-To Support Aids for EDS/HSD
This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). While these aids might be what work for us personally, we hope they offer inspiration and ideas to help you live your life to the fullest with EDS/HSD.
Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it
Cerebral venous outflow disorders describes a spectrum of conditions related to issues with how fluid drains from the brain.Experts are observing a connection between connective tissue disorders (like hypermobile EDS) and cerebral venous outflow disorders. Cerebral venous outflow disorders can cause pressure headaches (that often worsen when lying flat), dizziness, pulsatile tinnitus (a rare vascular form of tinnitus), neck pain, tenderness at the base of skull, vision disturbances, ‘brain fog’, and cognitive dysfunction. Cerebral venous outflow disorder may look different when it presents in individuals with connective tissue disorders than in individuals without, creating diagnostic challenges.
The Truth is that I will Always be Tired. It’s Part of my EDS.
Tiffany wakes up exhausted with her Ehlers-Danlos Syndrome issues. Life with Ehlers Danlos: Surviving Exhaustion While Still “Adulting” By Tiffany Early I’m tired. That’s not exactly a news flash. I’m forever and always tired. One thing that I have in common with the majority of the chronic illness and rare disease community is my chronic […]
Webinar by Dr. Pocinki – Recording Available
EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS. Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com PRESENTER: Alan Pocinki, MD, FACP TOPIC: Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue Click here for the recording of the educational program Click here […]
Webinar by Dr. Peter Rowe – Recording available
EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS. Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides used in this presentation PRESENTER: Dr. Peter Rowe is a […]
Top 3 Products for EDSers
Check out these product reviews from our EDS support group! **ALL proceeds go to help local EDS support groups and EDSawareness.com programs when you order from www.bodysupportstore.com Click here to view ALL PRODUCTS offered in the online store. _____________________________________________________________________ EDSers’ PRODUCT REVIEWS: Our Ehlers-Danlos support group discussed products that have made a big difference in reducing pain. Here are EDSers’ […]
