Archive for the ‘Managing Symptoms’ Category
Posted on July 4, 2016
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Posted on June 18, 2016
PRESENTATION TITLE: “Orthopedic Issues in the EDS Hand, Wrist and Arm” PRESENTER: Dr. William Ericson Sponsored by www.bodysupportstore.com The slides used in this presentation will be posted soon. Click to watch the recording of this presentation NOTE: There is a small black square on the presenter’s slides that we could not remove. INVITE YOUR FRIENDS: Spread […]
Posted on June 11, 2016
By Michael D. Pitman Staff Writer Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]
Posted on April 29, 2016
Click here to learn about the PT book that is helping EDSers throughout the US! For every purchase made through the following link, $1.00 will be donated to EDS Awareness programs.
Posted on April 28, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Cognitive Behavioral Therapy as a Coping Skill for EDS” PRESENTER: Sara Williams, Ph.D. — Pediatric Pain Psychologist and Clinical Director of the FIRST Program for Pain Rehabilitation Cincinnati Children’s Hospital Click IMAGE for the recording of this presentation. Click here for the link to the […]
Posted on April 21, 2016
This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos… We were married for 41 years. You’d think that after all of that time you would know everything there was to know about a person. – I knew Carol was a […]
Posted on April 19, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com . . . . TOPIC: “Mast Cell Activation Syndrome in EDS Patients (Part 2)” . . PRESENTER: Anne Maitland, MD, PhD – Director for Comprehensive Allergy & Asthma Care and the new Mast Cell Activation Center of New York Click IMAGE here for a link to […]
Posted on April 2, 2016
Hypermobile Ehlers-Danlos Syndrome Educational Session at Cincinnati Children’s Hospital Medical Center Please join us for an hour long session hosted by Dr. Derek Neilson discussing the diagnosis and management of hypermobile Ehlers-Danlos Syndrome (EDS). Dr. Neilson will review the criteria used to diagnose hypermobile EDS, and discuss general recommendations that help patients with EDS. He will […]
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