Archive for the ‘Managing Symptoms’ Category
Posted on November 22, 2022
Let’s be blunt: chronic illness and pain sucks. Many of us don’t only live with Ehlers-Danlos Syndrome (EDS), but also have a variety of comorbid conditions such as postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS), affectionately known as the EDS trifecta. Living with all of these takes ‘chronic illness and pain’ […]
Posted on March 30, 2022
Join us on Tuesday, May 10th at 12 pm EDT on a live Zoom call to learn ways to help improve the quality of your life if you face EDS. As we know, there is no cure, but these suggestions might help you have better control of your out-of-control disorder. My special guest speaker is […]
Posted on December 1, 2020
EDS patients may be genetically high-responders to laser photobiomodulation pain treatment. 85% of 45 EDS patients have very good or excellent pain reduction from laser photobiomodulation in our clinic. In one EDS patient, we have been able to reverse incipient gastrocnemius separation from its tendon, which previously required the patient to have surgery. All of […]
Posted on May 3, 2020
Disjointed is now live on Amazon and shipping. Click here for a link to order online, Description: Disjointed is for patients with hEDS/HSD and the physicians who treat them. hEDS/HSD is an underrecognized, complex, multisystemic disorder, with the silos of healthcare’s specialties often working against effective and efficient treatment. With 21 specialist & 6 resource chapters, […]
Posted on July 15, 2018
by: ALICE HOWARTH From searching for a cure to being repeatedly dismissed, former model Tori Chalmers opens up about being part of the invisible illness community. Tori Chalmers ES Lifestyle Newsletter Having any kind of illness is tough but add to that the fact of it being invisible, at times it can seem impossible to cope with. In the […]
Posted on June 24, 2018
POSTED 5:48 AM, JUNE 26, 2018, BY CNN WIRE, UPDATED AT 07:37AM, JUNE 26, 2018 Fox 59 File photo Super Bowl MVP Nick Foles is ecstatic about leading the Philadelphia Eagles to victory, but that’s not the triumph he celebrates daily. He gives that medal to his wife, Tori Foles, for what he calls her “amazing strength” […]
Posted on March 20, 2018
Tiffany wakes up exhausted with her Ehlers-Danlos Syndrome issues. Life with Ehlers Danlos: Surviving Exhaustion While Still “Adulting” By Tiffany Early I’m tired. That’s not exactly a news flash. I’m forever and always tired. One thing that I have in common with the majority of the chronic illness and rare disease community is my chronic […]
Posted on February 3, 2018
By: Mary Chris Jaklevic is a reporter-editor at HealthNewsReview.org. She tweets as @mcjaklevic. Tiffany Mielcarek was aghast when she saw NBC’s Today Show hype an experimental weight loss procedure that freezes a branch of the vagus nerve that sends hunger signals to the brain and regulates digestion. “They were talking about it as if this were a miracle. […]
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