Archive for the ‘Joint Hypermobility’ Category

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Henry Has Classical Ehlers-Danlos Syndrome

Posted on May 13, 2015

Little Henry and his family are struggling with Classical Ehlers-Danlos Syndrome. It took a year to be diagnosed. Now that the cause of his symptoms has been identified, his parents can better care for him.

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When Food Allergies Are Actually Mast Cell Activation Syndrome

Posted on May 1, 2015

Brynn had a long history of adverse reactions to many foods she was eating, but finally determined it was not traditional food allergies! She has found ways to manage her Mast Cell Activation Syndrome – including EpiPens and a service dog. By Kira Peikoff The Symptoms Brynn Duncan was 11 years old when her stomach started to revolt against food. Frequently […]

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Dr. Forest Tennant webinar on “Centralized Intractable Pain in Ehlers-Danlos” – Recording Available

Posted on April 7, 2015

Watch this FREE online learning session! Dr. Forest Tennant presents “Centralized Pain in EDS”. Since 1975, his passion is to provide guidance and hope to chronic pain patients.

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Fragile teen wishes to study medicine, spread awareness of Ehlers-Danlos Syndrome

Posted on March 24, 2015

15-year-old Mya Lilly has multiple dislocations each day caused by Ehlers-Danlos syndrome.  When asked if anything on her wish-list was unrelated to medicine or her health, she found it hard to think of one. She wishes for a wheelchair-friendly car and home. She is thankful to return to school and hopes to study medicine after graduating. She is passionate about EDS Awareness. By SARAH […]

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Single Mom Dealing with Ehlers-Danlos Syndrome

Posted on March 20, 2015

Ehlers-Danlos Syndrome makes it difficult for Kristina to accomplish daily living tasks.  But, she has been refused disability benefits in Australia on the basis that her condition is ‘curable’. She has trouble driving to her doctor appointments without pain and dislocation. She wants to spread awareness by sharing how EDS affects her daily life. By: Margaret Burin  (ABC […]

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“The Feldenkrais Method” Webinar by Cynthia Allen – Video Available

Posted on March 17, 2015

Watch this FREE online learning session!    Cynthia Allen, GCFP, STMI gave a presentation titled “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”. It focuses on movement techniques to increase your body awareness and learning how to improve your quality of movement.   Sponsored by www.bodysupportstore.com       Click here for a link to […]

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Dr. Mark Lavallee webinar “Exercise is Medicine” – Video Recording

Posted on March 3, 2015

Watch this FREE online learning session! Mark E. Lavallee, M.D presents “Exercise is Medicine – especially for Ehlers-Danlos”. He has EDS, classical type and has lectured at many EDNF conferences.

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