Archive for the ‘Autonomic Dysfunction & Pots’ Category

“POTs and EDS” Webinar by Dr. Henry Burkholder – Recording Available

Posted on January 6, 2015

  EDS Awareness invites you to watch this FREE webinar recording!    Sponsored by:     Dr. Henry Burkholder  presents “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”. He is a Pediatric Cardiologist and presenter at the 2014 EDNF Conference in Houston, TX.         PRESENTER:  Dr. Henry Burkholder, Pediatric Cardiologist   TOPIC:   Postural Orthostatic […]

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Dr. Peter Rowe – “Is The Physical Examination Normal in Chronic Fatigue Syndrome?”

Posted on October 24, 2014

Dr. Peter Rowe discusses 3 areas of dysfunction often found in Chronic Fatigue Syndrome patients —circulatory disturbances, joint hypermobility, and movement restrictions. These appear to have some commonality with Ehlers-Danlos Syndrome.  Fortunately, recent research is beginning to change the previous misperception that there are “no abnormal physical findings with CFS” and refute that it has a “psychosomatic origin”.   “In […]

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Brynn Is Allergic to the World — Despite Ehlers-Danlos & MCA — She is Making It A Better Place!

Posted on October 20, 2014

Brynn struggles with EDS, MCA and POTs, but she’s passionate about spreading awareness through social media. She believes in “the power of positivity and speaking out about her own experience”.   “At just 20-years-old, Brynn has several serious chronic health conditions, one of which requires her to have a feeding tube and be one of the only people […]

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Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014

Posted on October 10, 2014

Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]

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Webinar by Dr. Pocinki – Recording Available

Posted on August 29, 2014

EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about  Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS.  Dysautonomia was also addressed in his lecture. Sponsored by  PRESENTER:   Alan Pocinki, MD, FACP TOPIC:     Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue  Click here for the recording of the educational program  Click here […]

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Webinar by Dr. Peter Rowe – Recording available

Posted on July 16, 2014

  EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS.     Sponsored by    CLICK HERE for a link to the recording   CLICK HERE for the slides used in this presentation     PRESENTER:   Dr. Peter Rowe is a […]

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Attention Doctors: An EDS Patient’s Bill of Rights

Posted on June 6, 2013

Many EDS patients are struggling to get their doctors to understand their condition.  This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By     an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]

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Racing Wheelchair Helps EDS Teen Participate in School Sports

Posted on June 1, 2013

Michael was diagnosed with EDS at age 10. He also suffers from Dysautonomia, which is fairly common in the EDS population. He is able to remain active in basketball and track using his own wheelchair.   Gulf Coast News Today ROBERTSDALE, Alabama — “Michael Parnell, the 13-year-old son of Silverhill resident Tia Parnell, was recently presented […]

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