Archive for the ‘Managing Ehlers-Danlos’ Category

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Dr. Jan Dommerholt Webinar on “Physical Therapy for Ehlers-Danlos” – Video Recording

Posted on January 23, 2015

 EDS Awareness invites you to watch this FREE webinar recording!   Sponsored by www.bodysupportstore.com   TOPIC:    “Physical Therapy for Ehlers-Danlos”   PRESENTER:   Dr. Jan Dommerholt   About our speaker: Jan Dommerholt, DPT Jan is a recognized expert in the physical therapy diagnosis and treatment of persons with chronic pain syndromes, including EDS. He has lectured at EDNF patient […]

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Gabrielle’s Personal Battle with Ehlers-Danlos Syndrome

Posted on January 20, 2015

After being diagnosed with Ehlers-Danlos Syndrome, high-school student Gabrielle found comfort with members of the Young Life organization. She found purpose and motivation through her renewed spiritual connection. “Right after I got diagnosed with Ehlers-Danlos Syndrome (EDS) and figured out I could not play volleyball, I truly was devastated. I felt like I was missing out […]

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Ehlers-Danlos Service Dog is Nominated for Kennel Club Award

Posted on January 15, 2015

EDSer Shelley and her service dog, Kibble, have been nominated for the Kennel Club’s Eukanuba “Friends For Life” competition. He has helped her regain much independence! The dog is trained to assist Shelley in all aspects of her life, including retrieving items and pressing the alarm button on the phone if she has an emergency. A Dunstable dog lover and […]

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Woman with Ehlers-Danlos Syndrome (EDS) Has Painful Dislocations 10 Times a Day

Posted on January 10, 2015

When Jojo was diagnosed with EDS, she felt relieved! “Finally, I had an answer to why my body is the way it is.” Her EDS went undiagnosed for 24 years! This is not surprising, as our poll indicates more than 50% of EDS patients wait more than 20 years for a proper diagnosis.

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“POTs and EDS” Webinar by Dr. Henry Burkholder – Recording Available

Posted on January 6, 2015

  EDS Awareness invites you to watch this FREE webinar recording!    Sponsored by: www.bodysupportstore.com     Dr. Henry Burkholder  presents “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”. He is a Pediatric Cardiologist and presenter at the 2014 EDNF Conference in Houston, TX.         PRESENTER:  Dr. Henry Burkholder, Pediatric Cardiologist   TOPIC:   Postural Orthostatic […]

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Elisha Doesn’t Regret Decision to Amputate for Ehlers Danlos Pain Relief: Watch VIDEO STORY

Posted on December 30, 2014

Watch this video! Elisha Morgan is recovering from a controversial foot amputation — with no regrets. Whether you agree with her decision or not, there is no doubt of the bravery she’s displayed in this situation — we salute her strong spirit!

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Educational Advocacy and Accommodations for Ehlers Danlos Students

Posted on December 23, 2014

Students with medical conditions, such as Ehlers-Danlos Syndrome (EDS), should have equal educational opportunities in all countries. Unfortunately, that isn’t the reality – according to Amy King, an EDS student and advocate for adult education in the UK. Many adults living with Ehlers Danlos Syndrome (EDS) are highly intelligent, motivated and hard-working individuals looking for the opportunity to learn and contribute to their […]

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8 Year Old Forest Ranger with Ehlers Danlos Syndrome on TV

Posted on December 15, 2014

Watch this video about a boy with Ehlers Danlos Syndrome whose dream came true! “Eight-year-old Gabriel was officially named an honorary ranger at Yosemite National Park. Gabriel Lavan-Ying, from Gainesville, Florida, has Ehlers-Danlos syndrome, a debilitating and incurable disorder affecting that causes overly flexible joints and effects the skin and blood vessels. But when the Make-A-Wish Foundation […]

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