Archive for the ‘Managing Ehlers-Danlos’ Category

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“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome

Posted on July 4, 2016

By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]

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8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome

Posted on November 20, 2015

Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely.  Get a head start by gleaning some valuable pointers  from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]

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Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain

Posted on November 11, 2015

    _ _ _ Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain *** Deadline for Public input — ends Wednesday, January 13th *** Page down to see “4 WAYS you can add your voice” and to view the full list of Proposed Guidelines. Please note that EDS Awareness is not advocating FOR or AGAINST […]

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