Archive for the ‘EDS Support Group Directory’ Category

EDS Awareness Booth at the 2013 EDNF Conference

Posted on May 11, 2013

Don’t miss the 2013 EDNF Conference in Providence, RI. EDSawareness.com will be a sponsor again this year.  Stop by our booth to learn more about our free support group program! Here is a summary of the 2012 conference experience: Attendees witnessed several exciting announcements at the 2012 EDS learning conference! It was announced that the […]

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EDS Support Group Directory in Development at www.EDSawareness.com

Posted on August 22, 2012

  www.EDSawareness.com launched its new online resource at the EDNF Learning Conference last week in Cincinnati, Ohio. “We had an overwhelming response”, says John Ferman, Founder. “My wife passed away in 2008 – never knowing EDS was the cause of 30 years of chronic pain.  This was the same year my daughter was diagnosed with […]

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Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
  • 2-5 years (13%, 665 Votes)
  • 5-10 years (12%, 653 Votes)
  • 1 year (5%, 264 Votes)

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