Archive for the ‘Disability Petition’ Category

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Webinar on the Social Security Disability application process

Posted on October 1, 2014

Watch this online learning session! Kathleen Kane, ESQ spoke about the Social Security Disability application process, and factors that EDSers should consider when filing for disability. Sponsored by www.bodysupportstore.com  PRESENTER: Kathleen Kane, ESQ (Disability Attorney with EDS experience) TOPIC:  “Applying for Disability” Click here for the recording of this webinar program Click here for the slides that were used for this […]

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Former Gymnast Launches Awareness Petition for EDS

Posted on August 7, 2013

Julie is promoting a petition in the UK.    CLACTON AND FRINTON NEWS Reports: “Julie Robertshaw spent her early years as a gymnast with incredible potential, excelling in her talent. But after being struck with unexplained pains in her late teens, her extraordinary flexibility revealed itself be a curse, not a blessing. Now 44, she […]

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Explaining Disability​-Part of What Makes Us Disabled

Posted on January 17, 2013

Author: Jonathan  RodisPresident-Massachusetts  Chapter of the National Marfan FoundationHead-EDS Massachusetts  and New England Support Group “I wanted to share with you something I wrote to  help everyone understand what it is like to be disabled, what it is like to  have an invisible disability, what to do if you find yourself trying to explain  your […]

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Sign Petition for EDS at WhiteHouse.gov

Posted on December 5, 2012

YOUR VOTE MATTERS!!!! 25,000 signatures are needed by the end of the year!   See instructions and links below. (Adding your vote takes 30 seconds…) This petition was created by Alisa H. from Galloway, OH. (Unfortunately, we do not have her contact information.) Our understanding of why she created the petition: To promote EDS awareness & education, […]

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How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
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