Archive for the ‘Diagnosis’ Category

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Cassandra Campbell on finding acceptance as a person with EDS

Posted on July 19, 2022

For our August newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, writer Beth Miller speaks with Cassandra Campbell, a coach, author and EDS advocate. Campbell shares […]

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Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK .. (1 in 500): a national electronic cohort study and case–control comparison

Posted on November 14, 2020

Authors Joanne C Demmler1,                                     Mark D Atkinson1,  Emma J Reinhold2,  Ernest Choy3,  Ronan A Lyons1,  Sinead T Brophy1 Author affiliations Swansea University Medical School, Swansea University, Swansea, UK Royal College of General Practitioners, London, UK School of Medicine, Cardiff University, Cardiff, UK Correspondence […]

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Causes, Signs, Diagnosis, and Treatment for Ehlers-Danlos Syndromes

Posted on July 5, 2017

By Catherine Roberts You likely haven’t given too much thought to your skin, joints, and blood vessels lately—unless you’ve suffered an wound that required stitches or a joint injury that put you off your game for a few weeks. However, for patients with Ehlers-Danlos syndromes, a set of inherited disorders that strike these connective tissues, […]

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My Wife Had EDS and Did Not Know IT! – 8th Year Anniversary

Posted on April 21, 2016

  This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos…  We were married for 41 years.  You’d think that after all of that time you would know everything there was to know about a person. –          I knew Carol was a […]

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Hypermobile EDS Educational Session – April 21, 2016

Posted on April 2, 2016

Hypermobile Ehlers-Danlos Syndrome Educational Session at Cincinnati Children’s Hospital Medical Center Please join us for an hour long session hosted by Dr. Derek Neilson discussing the diagnosis and management of hypermobile Ehlers-Danlos Syndrome (EDS). Dr. Neilson will review the criteria used to diagnose hypermobile EDS, and discuss general recommendations that help patients with EDS.  He will […]

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8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome

Posted on November 20, 2015

Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely.  Get a head start by gleaning some valuable pointers  from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]

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Ehlers-Danlos Syndrome May Increase Susceptibility to Infections

Posted on June 25, 2015

People with Ehlers-Danlos Syndrome (EDSers) may have higher risk for infections. Fragile skin and poor healing may lead to skin infections.  EDSers often have a lowered immune system, possibly due to chronic stress on multiple body systems or an IgG-3 deficiency.  By JORAWSTRON People with EDS seem to get more infections than people without EDS, and these infections often […]

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