Archive for the ‘Fundraising’ Category

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Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes

Posted on March 5, 2024

“Decoding Medical Deductions” is an invaluable resource for individuals managing chronic illnesses and navigating the complex landscape of medical expenses and taxes in the United States. This comprehensive guide provides ten top strategies and resources to effectively manage medical expenses, optimize costs, and prepare for tax filing. The ebook covers various topics, including deduction eligibility, […]

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Run like a Zebra For EDS Race

Posted on April 29, 2021

Chronic Pain Partners 501(c)(3) is a gold Sponsor for this Event.     Florence, WI | Saturday, May 21, 2022 at 9:00 AM CST   info@runlikeazebra.com | 715-301-0905 Race Information 1k & 5K Run, Walk or Roll Place Date and Time 749 Central Ave Florence, WI 54121 Saturday, May 21, 20229:00 am CST Details The […]

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Father Raising Awareness with Ryan Challenge and Vascular Ehlers-Danlos Syndrome (VEDS)

Posted on August 27, 2018

  By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys.  He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]

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Ehlers-Danlos Society Receives $1 Million Gift for Hypermobile Ehlers-Danlos syndrome (hEDS) Research

Posted on February 13, 2018

EXCITING ANNOUNCEMENT! An anonymous donor has presented us with a $1 million gift to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often disabling connective tissue disorder.   This is the single largest gift in the 33-year history of the Ehlers-Danlos Society, and the largest individual gift in […]

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Dayton Zebras Conquer Ehlers-Danlos, Chiari Walk Across America 5K

Posted on October 1, 2016

        On September 17, 2016 the Dayton Zebras participated in the Conquer Chiari Walk Across America 5K in Beavercreek, OH. This year the Dayton Zebras set up a selfie booth and EDS awareness table. We reached many people that had never heard of EDS. We were also able to reach people that did […]

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Successful Ehlers-Danlos Hoofbeat Run Walk-N-Roll in King Ferry, NY.

Posted on August 13, 2016

Staff writer Gwendolyn Craig Thank you to all who participated in, volunteered at and donated to the Ehlers-Danlos Hoofbeat Run Walk-N-Roll on August 6th. KING FERRY — Elizabeth Shaw loves to swim, bike and practice CrossFit. She has cycled around every Finger Lake, and for about three years, she has been a local personal trainer, helping […]

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