Archive for the ‘Conferences’ Category

Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium Live Stream on December 8, 2017

Posted on December 5, 2017

Subject: Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium Live Stream on December 8, 2017 ​Below you’ll find the live stream link to the Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium.  The program is scheduled to begin at 10:00am.  The link will become available at 9:45am on Friday, December 8, 2017.  For optimum viewing, we advise that you minimize other streaming […]

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Activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8

Posted on September 11, 2017

We participated again in a very successful EDS Learning Conference. Here are connections to activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8             New EDS Physician CME Educational Online Program announced   Click here for Jon Rodis EDS Society Conference Summary Click here for Dr. Chopra’s presentation […]

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EDS Society Global Conference Summary – Jon Rodis

Posted on September 10, 2017

Jonathan Rodis Founder and Co-leader-Ehlers-Danlos New England/Massachusetts Support Group President-Massachusetts Chapter of The Marfan Foundation Chair-Physician Awareness Committee(s) for Marfan and Ehlers-Danlos Syndrome(s) National Disability and Medical Advocate for Rare Disorders Member: Winthrop Disability Commission EDS Society Global Learning Conference in Las Vegas Recap   As I promised, here is my recap of the EDS […]

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2017 EDS Learning Conference Registration is Open

Posted on May 26, 2017

  The Ehlers-Danlos Society has scheduled the 2017 Ehlers-Danlos Society Global Learning Conference, September 7th-9th, Bally’s Hotel in Las Vegas. Registration details, including prices, are on the link below. Click here for registration information. We will be a conference sponsor again for the 6th year.   Please visit with us at our EDS Awareness booth. Contact […]

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Dr. Tinkle Edits EDS Special Supplement for American Journal of Medical Genetics

Posted on March 18, 2017

Dr. Tinkle Edits Ehlers-Danlos Sydrome Special Supplement for American Journal of Medical Genetics.   Dr. Tinkle also served as an author / co-author for one-third of the papers in the supplement: The Ehlers-Danlos Syndromes: Reports from the International Consortium on the Ehlers-Danlos Syndromes PRZen / CHICAGO — Left Paw Press congratulates Dr. Brad T Tinkle […]

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#ZebraStrong! The Ehlers-Danlos Society Zebra Rally in Baltimore’s Inner Harbor

Posted on July 18, 2016

The Ehlers-Danlos Society hosted the  #ZebraStrong, a rally in Baltimore’s Inner Harbor on Saturday, July 16, 2016 to build awareness for Ehlers-Danlos syndrome, an often painful and disabling, yet highly under-diagnosed and misdiagnosed genetic disorder. The rally was held immediately following the Society’s Global Learning Conference which was held at the Hilton Baltimore July 14-16. Over 500 attendees […]

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Wellapalooza and the EDS Ride for a Cause

Posted on October 1, 2015

Wellapalooza and the EDS Ride for a Cause.  – Our speakers for Wellapaloooza on Saturday, November 14th, 2015 are: 1. Dr. Theoharides 2. Dr. Telair (a naturopath who’s been working with Dr. Francomano) 3. Dr. Pocinki _ – The 2nd Annual EDS Ride for a Cause on Sunday, November 15th, 2015 will benefit EDS […]

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How long until you received a proper diagnosis for EDS?

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