Archive for the ‘Conferences’ Category

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2017 EDS Learning Conference Registration is Open

Posted on May 26, 2017

  The Ehlers-Danlos Society has scheduled the 2017 Ehlers-Danlos Society Global Learning Conference, September 7th-9th, Bally’s Hotel in Las Vegas. Registration details, including prices, are on the link below. Click here for registration information. We will be a conference sponsor again for the 6th year.   Please visit with us at our EDS Awareness booth. Contact […]

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Dr. Tinkle Edits EDS Special Supplement for American Journal of Medical Genetics

Posted on March 18, 2017

Dr. Tinkle Edits Ehlers-Danlos Sydrome Special Supplement for American Journal of Medical Genetics.   Dr. Tinkle also served as an author / co-author for one-third of the papers in the supplement: The Ehlers-Danlos Syndromes: Reports from the International Consortium on the Ehlers-Danlos Syndromes PRZen / CHICAGO — Left Paw Press congratulates Dr. Brad T Tinkle […]

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#ZebraStrong! The Ehlers-Danlos Society Zebra Rally in Baltimore’s Inner Harbor

Posted on July 18, 2016

The Ehlers-Danlos Society hosted the  #ZebraStrong, a rally in Baltimore’s Inner Harbor on Saturday, July 16, 2016 to build awareness for Ehlers-Danlos syndrome, an often painful and disabling, yet highly under-diagnosed and misdiagnosed genetic disorder. The rally was held immediately following the Society’s Global Learning Conference which was held at the Hilton Baltimore July 14-16. Over 500 attendees […]

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Wellapalooza and the EDS Ride for a Cause

Posted on October 1, 2015

Wellapalooza and the EDS Ride for a Cause.  – Our speakers for Wellapaloooza on Saturday, November 14th, 2015 are: 1. Dr. Theoharides  themastcellmaster.com 2. Dr. Telair (a naturopath who’s been working with Dr. Francomano) 3. Dr. Pocinki _ – The 2nd Annual EDS Ride for a Cause on Sunday, November 15th, 2015 will benefit EDS […]

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New Strategic Marketing Resource for Ehlers Danlos National Foundation

Posted on September 12, 2014

We are pleased to announce: Jane Mitakides has been appointed to the Ehlers-Danlos National Foundation (EDNF) board of directors. Her husband, Dr. John Mitakides, is one of our Educational Webinar speakers and a well-known EDS / TMJ expert. Jane has a background in strategic marketing and communications, and will be a valuable asset to the EDNF. She […]

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5th Annual New England Marfan Syndrome and Connective Tissue Disorders Symposium

Posted on August 20, 2014

Join us on Saturday, September 13, 2014  in Manchester, NH.  A full day discussion for patients, family, and healthcare professionals addressing Marfan Syndrome, Ehlers-Danlos, Loeys-Dietz Syndrome, and other related connective tissue disorders   Supported by Ambrey Genetics, The Marfan Foundation, MA Chapter and the NH/VT Network of the Marfan Foundation Drs. Hal Dietz and Brad […]

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Australia’s 1st Ehlers Danlos Syndrome Conference was Attended by 300

Posted on July 26, 2014

It was a well-attended 3-day event!  Australia’s First EDS Conference attracted EDS experts, including physiotherapists, cardiologists, gastroenterologists, and US Geneticist Dr. Brad Tinkle. “Parramatta welcomed the first national conference for Ehlers-Danlos Syndrome (EDS) on July 19 and 20, a debilitating disorder causing fragile joints, skin and muscles. The three day event filled Novotel Parramatta’s Lennox room with almost 300 […]

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