Archive for the ‘Awareness’ Category
Posted on July 5, 2017
By Catherine Roberts You likely haven’t given too much thought to your skin, joints, and blood vessels lately—unless you’ve suffered an wound that required stitches or a joint injury that put you off your game for a few weeks. However, for patients with Ehlers-Danlos syndromes, a set of inherited disorders that strike these connective tissues, […]
Posted on June 18, 2017
By John Lynds, Times Staff: Just before she turned 3-years-old, Beth Villani’s daughter, Hannah was diagnosed with Ehlers-Danlos Syndrome. “Our daughter was diagnosed in January at just age 2 years and 10 months,” said Villani. “I will be honest and say that hearing that news broke my heart. When the doctor told me we would […]
Posted on May 28, 2017
By MICHAEL LYON • MAY 15, 2017 The Woodmen Tower in Omaha, NE, was lit up in black and white “zebra” stripes Monday night, 5/15 for Ehlers-Danlos Syndrome (EDS) Awareness Month, which takes place in May. This iheart radio show in Omaha, NE featured Wendy Hamilton, Colleen McCoy, leaders if the Nebraska […]
Posted on May 4, 2017
Have you ever looked at logos and considered that they may have a hidden meaning or inspiration behind their creation? Our favorite brands may hold hidden messages behind the fancy artwork. To uncover the meaning embedded in the EDS Awareness logo, we asked John Ferman, the co-founder of EDS Awareness (Chronic Pain Partners). Introduction John […]
Posted on May 4, 2017
Many Ehlers-Danlos Syndromes (EDS) experts believe that its prevelance is higher than once thought. Estimates range from 1 in 500 to 1 in 100. Dr. Fraser C. Henderson, Sr., MD, comments in this video that “1 in 10 Americans have hypermobility connective tissue disorders. That’s 30 million people – and we don’t know exactly […]
Posted on April 28, 2017
Artist, Brie Dadich, shares her photography and documentary film about people living with EDS in hopes of raising awareness. It also comments on the frustrations and wisdom discovered as the zebras in focus adapt their lifestyles to remain positive while living with an invisible illness. The 2017 Fine Art & Graphic Design Senior Exhibition, also […]
Posted on March 25, 2017
The 2017 EDS Classifications: Your Questions Answered!
Posted on March 6, 2017
Rare disease day
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