Archive for the ‘Community’ Category

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Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium Live Stream on December 8, 2017

Posted on December 5, 2017

Subject: Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium Live Stream on December 8, 2017 ​Below you’ll find the live stream link to the Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium.  The program is scheduled to begin at 10:00am.  The link will become available at 9:45am on Friday, December 8, 2017.  For optimum viewing, we advise that you minimize other streaming […]

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Activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8

Posted on September 11, 2017

We participated again in a very successful EDS Learning Conference. Here are connections to activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8             New EDS Physician CME Educational Online Program announced   Click here for Jon Rodis EDS Society Conference Summary Click here for Dr. Chopra’s presentation […]

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EDS Society Global Conference Summary – Jon Rodis

Posted on September 10, 2017

Jonathan Rodis Founder and Co-leader-Ehlers-Danlos New England/Massachusetts Support Group President-Massachusetts Chapter of The Marfan Foundation Chair-Physician Awareness Committee(s) for Marfan and Ehlers-Danlos Syndrome(s) National Disability and Medical Advocate for Rare Disorders Member: Winthrop Disability Commission EDS Society Global Learning Conference in Las Vegas Recap   As I promised, here is my recap of the EDS […]

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New Ehlers-Danlos Syndromes Physician CME Education Program

Posted on September 6, 2017

      Introduced at the EDS Conference in Las Vegas   About this program. The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles for the diagnosis, classification, and treatment of Ehlers-Danlos Syndromes (EDS) and related […]

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Ehlers-Danlos Syndromes – Structurally Unsound

Posted on August 7, 2017

Hypermobile EDS is difficult to diagnose because it devastates the whole body and causes numerous symptoms. By Mary Vuong Sarrah Hannon once led an active life of triathlons, marathons and rock climbing. Now she refrains from lifting a gallon of milk. Hannon, 30, lives with Ehlers-Danlos Syndrome (EDS), a group of genetic connective tissue disorders. The […]

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