Archive for the ‘Child Abuse Claims’ Category

Haley Rises Above Ehlers-Danlos Syndrome, Meets Tim Tebow

Posted on August 3, 2014

Haley’s wish will come true as she spends personal one-on-one time with her role model, Tim Tebow! Tim Tebow Foundation’s “Wish 15” program (W15H) reaches out to kids with life-threatening illnesses whose wish is to meet Tim Tebow.  As we kick off our W15H season, we are excited to partner with the Fairmont Scottsdale Princess Resort for a […]

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Six-year-old Lillie-Grace Fights Daily Battle with Ehlers-Danlos Syndrome

Posted on June 4, 2014

This six-year-old girl may have challenges, but she attends school and has many friends. She loves dancing, singing, and swimming.  “An inspirational six-year-old girl with a rare condition has told of her daily battle with the syndrome. Lillie-Grace Tomlinson was born with Ehlers-Danlos syndrome (EDS) but was only diagnosed last year. The condition is caused by […]

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When is Flexible Too Flexible? Ehlers-Danlos Syndrome!

Posted on April 29, 2014

It is interesting that genetics don’t seem to be consistent in this family. By Jeff Leen, The Washington Post. “Mildred Burke had one of the strongest necks in the world. A champion pro wrestler in the 1930s and the first female athlete to earn $1 million, Burke was only 5 feet 2 inches tall, but […]

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Judge Reunites Family With Child Affected By Ehlers-Danlos Syndrome

Posted on April 13, 2014

This is another tragic story of couple charged with child abuse due to an Ehlers-Danlos related injury. “It was the type of accident that could happen to any parent – in a split second, a young baby rolls off the bed and falls to the floor. For most, the outcome is a few tears and […]

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Is a Fractured Bone Child Abuse or Ehlers-Danlos Syndrome?

Posted on February 12, 2014

There has been much discussion lately about parents being accused of child abuse when taking their children to the ER with a dislocated joint or fractured bones. By Vincent Iannelli, M.D. “Bone broke, me fix.” “That’s the running joke in medical school about orthopedic surgeons. Of course, there is a lot more to treating broken bones […]

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Ehlers-Danlos Syndrome? More Claims of “Child Abuse” Emerge

Posted on January 10, 2014

If you have been following the story about the Huber’s being arrested for child abuse you can relate to this new story in North Texas of undiagnosed bone fractures resulting in a criminal or child custody case. by JANET ST. JAMES DALLAS — “Cell phone video is the only way Darlyn Harrell and Adam Bonham can […]

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Current Poll

How long until you received a proper diagnosis for EDS?

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