Archive for the ‘Chiari’ Category
Posted on January 5, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who may […]
Posted on December 30, 2015
January 5, 2016
Live Webinar at 7:30 pm EDT
Dr. Petra Klinge (Neurosurgeon) presents “Tethered Cord Syndrome in Ehlers-Danlos”.
Posted on May 31, 2015
The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!
Posted on April 15, 2015
Recording and slides are available for the Free EDS – Chiari Physician Conference held in Cincinnati, Ohio
Posted on July 3, 2014
The OPUS hospital music program helps James cope with Ehlers-Danlos pain. In addition, a recent study showed 29% lower anxiety levels and a lower average breathing rate in patients who were played music during their operations. Click here to watch videos demonstrating how the OPUS music therapy program is helping patients. By Dan Russell, Nottingham Post. “MUSIC is helping an 11-year-old boy […]
Posted on February 10, 2014
The diagnosis was bittersweet. It was good to finally have an answer …. Ehlers-Danlos Syndrome! By Emily McComas CHARLESTON, W.Va. — Kyli Wolfson was losing hope. “For most of her life, she had struggled with a lack of energy. She couldn’t keep up with her peers in middle school gym class and tried to work with […]
Posted on November 13, 2013
Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life. She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]