Archive for the ‘Chiari’ Category

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Dayton Zebras Conquer Ehlers-Danlos, Chiari Walk Across America 5K

Posted on October 1, 2016

        On September 17, 2016 the Dayton Zebras participated in the Conquer Chiari Walk Across America 5K in Beavercreek, OH. This year the Dayton Zebras set up a selfie booth and EDS awareness table. We reached many people that had never heard of EDS. We were also able to reach people that did […]

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Free Webinar – “Chiari Malformation in EDS” – Recording Available

Posted on March 1, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com     TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer   Click IMAGE for a link to the recording Click here for a link to the presenter’s slides     INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who […]

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Free Webinar – “Tethered Cord Syndrome in Ehlers-Danlos” – Recording Available

Posted on January 5, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE  for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who may […]

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EDS & Chiari “Unite@Night” Walks in Ohio

Posted on May 31, 2015

The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!

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Ontario Family Fights for Province to Pay for Ehlers Danlos Surgery

Posted on September 29, 2014

Erika received major funding for her needed surgery. It came from the generosity of her community. Should this money have come from Ontario’s public health insurance?  By Susan Gamble.   Two years ago, the community did what the Ontario government refused to do and raised $100,000 so a St. George, Ont., teen could get potentially life-saving surgery […]

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Jessica Participates in the first “Conquer Chiari Walk Across America”

Posted on September 19, 2014

Jessica Paddack has endured many surgeries throughout her 15 year battle with Chiari malformation. One of her Chiari surgeries led to the discovery of her Ehlers-Danlos Syndrome. The “Conquer Chiari Walk Across America” is this Saturday. By: RENE RAY DE LA CRUZ. The walk will be one of many across the country designed to raise funds for research, education and awareness programs. […]

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