Articles
Posted on November 6, 2023
In this interview, Christie Cox speaks with a rising doctor who also has hEDS and other comorbidities, Roman Fenner. Fenner is currently enrolled in the Medical University of South Carolina (MUSC) as a dual enrollment student for an MD and PhD – meaning he will learn how to lead medicine and science combined in an […]
Posted on August 31, 2023
This is the second article in our series covering psychological medical trauma. The first article provided an introduction to what concepts of psychological medical trauma exist and the newly-created concept of clinician-associated trauma. It also introduced a study regarding hEDS patients and clinician-associated trauma. This article will look deeper into the details of this study […]
Posted on August 23, 2023
Living with a rare disease like hEDS (Hypermobile Ehlers-Danlos Syndrome) can lead to misunderstandings and sometimes offensive comments from people who don’t get it. However, handling these remarks with wit and wisdom can make the situation easier and lighten the load. Here are ten clever comebacks for handling offensive comments about hEDS: “You’re just lazy.” […]
Posted on August 22, 2023
It is challenging to find the source of our gut problems, so many of us have related to hypermobility. The volunteer media team at Chronic Pain Partners tried to tackle the basics so our readers could have a brief introduction to the variances and testing available for different diagnoses of these often ‘gut-wrenching’ illnesses. Note: We […]
Posted on August 21, 2023
When it comes to health crises, only a few diagnoses can be as daunting as Ehlers-Danlos syndrome (EDS). But you know what they say, “When life gives you lemons, make lemonade” – or, in this case, when life gives you chronic pain and mobility issues, make jokes (if you can)! Before we dive into the […]
Posted on August 20, 2023
[Content warning: trauma, PTSD, mental healthcare, negative clinician behavior, difficult medical encounters] Have you ever read something that left you speechless? I have so many thoughts and feelings about this article – ones that I can’t express with any sort of coherence at the time. What I can say: clinicians READ THIS (finger pointing down […]
Posted on August 19, 2023
I sat in my car on the edge of the San Francisco Bay during a huge storm staring at my phone, finger hovering over the button on a dating app to post a profile that, if pushed, had the potential to change my life. I had recently moved back to the Bay Area and was […]
Posted on June 30, 2023
Suri Ellerton is a filmmaker, has three children, and lives with Ehlers-Danlos Syndrome and various comorbid conditions. In this interview with Chronic Pain Partners’ Karina Sturm, Ellerton shares her EDS journey, what it means to be a disabled parent, and how her own experiences relate to her latest film project, “The Game.” Sturm: Hi, Suri! […]
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